March 23rd, 2023
Some of you may not know who Amber Sarcone is. In Philly, she’s a part of the royal family. Her family runs Sarcone’s Bakery, makers of some of the most delicious damn bread you’ll ever have the pleasure of shoving into your mouth. Her cousin is…
Uncategorized Posts
March 16th, 2023
A research team led by Dr Darrell Green, a trustee of the Bone Cancer Research Trust, have identified a new drug that works against all main forms of bone cancer. Researchers at the University of East Anglia discovered that the drug, called…
March 15th, 2023
The Chondrosarcoma Foundation in partnership with the National Organization for Rare Disorders (NORD®) has launched the Chondrosarcoma Patient Registry. The patient registry creates a platform for patients around the world to strengthen their…
March 5th, 2023
The Chondrosarcoma Foundation is developing a Patient / Family/ Caregiver Advisory Board in the effort to create a voice for chondrosarcoma patient’s and caretakers to address concerns and advocate for effective treatment and quality care. The…
March 2nd, 2023
The Chondrosarcoma Foundation in partnership with the National Organization for Rare Disorders (NORD®) has launched the Chondrosarcoma Patient Registry. Chondrosarcoma is a rare bone cancer that currently has no cure. Its prevalence and origin are…
February 24th, 2023
The time has come to make rare diseases a national public health imperative For decades, the rare disease community has been striving for greater recognition and scientific breakthroughs addressing the unmet medical needs millions of Americans face…
February 20th, 2023
The Chondrosarcoma Foundation is developing a Patient / Caregiver / Family Advisory Board in the effort to create a voice for the chondrosarcoma community to address concerns and advocate for effective treatment and quality care. The advisory board…
February 3rd, 2023
Join the Fight Wear A Yellow Ribbon on Monday, February 6. Post Your Picture to #CSWECARE Sign Our Petition for more Clinical Trials: www.csfshayna.org/support-cs-research/
January 29th, 2023
We are just one week away from hosting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 32nd birthday). This is our international effort to educate the public about this rare bone cancer and to build a coalition to support more…
January 24th, 2023
Abstract Mesenchymal chondrosarcoma is a rare, high-grade, primitive mesenchymal tumor. It accounts for around 2-10% of all chondrosarcomas and mainly affects adolescents and young adults. We previously described the HEY1-NCOA2 as a recurrent gene…