Author Archives for admin

Just published: New ESMO-EURACAN-GENTURIS Guidelines for Soft Tissue and Visceral Sarcomas

July 23, 2021 8:59 pm Published by Comments Off on Just published: New ESMO-EURACAN-GENTURIS Guidelines for Soft Tissue and Visceral Sarcomas

View it online if you can’t see pictures Just published: New ESMO-EURACAN-GENTURIS Guidelines for soft tissue sarcomas The updated ESMO-EURACAN-GENTURIS (European Society for Medical Oncology; European Reference Network for Rare Adult Solid Cancers; European Reference Network for Genetic Tumour Risk Syndromes) Clinical Practice Guidelines for Soft Tissue and Visceral Sarcomas have been published in Annals [...]


NORD Webinar – Genetic Counseling for Rare and Undiagnosed Conditions: August 12, 2021

July 22, 2021 3:27 pm Published by Comments Off on NORD Webinar – Genetic Counseling for Rare and Undiagnosed Conditions: August 12, 2021

ABOUT | NEWS | EVENTS | CONTACT | DONATE Genetic Counseling for Rare and Undiagnosed Conditions: What Is it, Do I Need It and How Can I Find It? Date: Thursday, August 12, 2021 Time: 2:00 – 2:45pm ET Register Now Many rare diseases have an underlying genetic cause. Individuals and families living with a [...]


Dexter Jin, Ph.D. from Foundation Medicine will Address Genetic Sequencing at Virtual Dialogue

July 17, 2021 5:52 pm Published by Comments Off on Dexter Jin, Ph.D. from Foundation Medicine will Address Genetic Sequencing at Virtual Dialogue

Chondrosarcoma CS Foundation, Inc. Virtual Dialogue 3: Taking Charge of Your Care Third International Virtual Dialogue (VIA Zoom) Tuesday, September 14, 2021 7:30PM – 9:00PM (Eastern Standard Time / New York) The Chondrosarcoma CS Foundation, Inc. will host its Third International Forum / Virtual Dialogue featuring a panel of Chondrosarcoma survivors and prominent experts to [...]


Mike Snyder a CS Survivor will address Taking Charge of Your Care on September 14

July 15, 2021 6:08 pm Published by Comments Off on Mike Snyder a CS Survivor will address Taking Charge of Your Care on September 14

Taking Charge of Your Care Virtual Dialogue 3 September 14, 7:30PM -9:00PM EST Via Zoom Registration: https://csfshayna.org/virtual-dialogue3-registration/ Chondrosarcoma Survivors and Sarcoma Providers will discuss how you can make informed decisions to take charge of your care. One of the five presentors is Mike Snyder. Mike Snyder lives in Albuquerque, New Mexico with his wife, Sarah. [...]


NORD Named an Official Charity Partner of the 2021 TCS New York City Marathon

July 15, 2021 5:53 pm Published by Comments Off on NORD Named an Official Charity Partner of the 2021 TCS New York City Marathon

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Virtual Dialogue 3: Taking Charge of Your Care

July 12, 2021 8:56 pm Published by Comments Off on Virtual Dialogue 3: Taking Charge of Your Care

Chondrosarcoma CS Foundation, Inc. Virtual Dialogue 3: Taking Charge of Your Care Third International Virtual Dialogue (VIA Zoom) Tuesday, September 14, 2021 7:30PM – 9:00PM (Eastern Standard Time / New York) Join Us for This Very Informative Event: Click here to Register The Chondrosarcoma CS Foundation, Inc. will host its Third International Forum / Virtual [...]


Bone Cancer Research Trust promotes Sarcoma Awareness Month

July 5, 2021 12:47 am Published by Comments Off on Bone Cancer Research Trust promotes Sarcoma Awareness Month

This #SarcomaAwareness Month, please help raise awareness of the symptoms of bone sarcoma by liking and sharing our graphic below. Symptoms of bone sarcoma / primary bone cancer can be very general and often appear similar to the symptoms of sports injuries, growing pains or many other common conditions such as tendonitis or arthritis. If [...]


Message from Shayna Kramer on Sarcoma Awareness Month

July 2, 2021 7:29 pm Published by Comments Off on Message from Shayna Kramer on Sarcoma Awareness Month

Listed below is a message sent by my late daughter Shayna two years ago (July 2, 2019) to promote Sarcoma Awareness Month. Yesterday was the first day of Sarcoma Awareness Month. As someone that is currently fighting a sarcoma I can say that my life has change so much since I was first diagnosed in [...]


Inhibrx Initiates a Potential Registration-Enabling Phase 2 Study of INBRX-109 in Conventional Chondrosarcoma Patients, Updates Data for Ongoing Phase 1 Study and Announces Amended Loan Agreement with Oxford

June 27, 2021 3:05 am Published by Comments Off on Inhibrx Initiates a Potential Registration-Enabling Phase 2 Study of INBRX-109 in Conventional Chondrosarcoma Patients, Updates Data for Ongoing Phase 1 Study and Announces Amended Loan Agreement with Oxford

Published: Jun 21, 2021 SAN DIEGO, June 21, 2021 /PRNewswire/ — InhibRx, Inc. (Nasdaq: INBX), a biotechnology company with four clinical programs in development, announced initiation of a potential registration-enabling Phase 2 study of INBRX-109 in conventional chondrosarcoma. Inhibrx, Inc. logo (PRNewsfoto/Inhibrx, Inc.) INBRX-109 is a precision-engineered, tetravalent death receptor 5 (DR5) agonist antibody designed [...]


Testing the Combination of Belinostat and SGI-110 (Guadecitabine) for the Treatment of Unresectable and Metastatic Conventional Chondrosarcoma

June 19, 2021 5:13 pm Published by Comments Off on Testing the Combination of Belinostat and SGI-110 (Guadecitabine) for the Treatment of Unresectable and Metastatic Conventional Chondrosarcoma

SUMMARY This phase II trial studies the effect of belinostat and SGI-110 (guadecitabine) combination therapy in treating patients with conventional chondrosarcoma that cannot be removed by surgery (unresectable) and has spread to other places in the body (metastatic). Belinostat may stop the growth of tumor cells by blocking some of the enzymes needed for cell [...]