CS Biobank
Chondrosarcoma Biobank
A Voluntary Tissue Donor Program to Advance Chondrosarcoma Research
Chondrosarcoma Foundation / Fred Hutchinson Cancer Center
The Chondrosarcoma Foundation is collaborating with the Fred Hutchinson Cancer Center in Seattle, Washington to create a Chondrosarcoma Tissue Biobank to Advance Research and Clinical Trials to find effective medications to prevent the disease progression of chondrosarcoma.
The purpose of this volunteer tissue donor program is to collect and store chondrosarcoma tumor tissue and establish a comprehensive database with related clinical information to help researchers better understand chondrosarcoma and to develop laboratory models (such as 3D microtumors and cell lines) that can be used to identify effective treatments. Your participation will help advance research into Chondrosarcoma and investigate potential treatment options.
Eligibility
Any Patient that has been diagnosed with chondrosarcoma, an ultra-rare bone cancer by a pathologist from a tissue biopsy.
Procedure
We are looking for fresh tissue from a recent biopsy or surgery or stored frozen tissue from a past biopsy or surgery. We will collect leftover tissue from your surgery or biopsy after your doctor and pathologist have taken all the material needed for your medical care. No additional procedures will be performed for research purposes.
Clinical information such as diagnosis, age, sex, and general treatment history will be matched to your donated tissue sample in our research database. All specimens and data will be labeled with a unique ID number. Your name, personal information or other identifiers will not be used.
This study involves no risk. No additional procedures or interventions will be performed. Strict measures are in place to protect your privacy. All samples and data will be coded and stored securely; identifying information will not be shared with anyone outside the research team.
Other Considerations
You are free to say yes or no, or to withdraw your tissue after we obtain it. There is no penalty or loss of benefits if you say no. Whatever you decide, your regular medical care will not change.
There are no extra costs for having extra samples taken for the program. You will not be paid for giving these extra samples.
To enroll:
Complete and Submit the Enrollment Information Form.
Once the Enrollment Information Form is received, you will be e-mailed the Informed Consent Form from the Fred Hutchinson Cancer Center. Please read the form carefully, make sure you understand the content, if not contact us for questions at: [email protected]
When you are ready please docusign, scan and e-mail the Informed Consent Form to the Fred Hutchinson Cancer Center as instructed.
That is all you need to do to participate. Staff from the Fred Hutchinson Cancer Center will send a kit to the Treatment Center you indicate to collect your tissue.
We anticipate approximately 50 participants in the study. This study has no anticipated end date for recruitment.
Questions:
Contact:
Jeffrey Kramer
Chondrosarcoma CS Foundation
E-mail: [email protected]
Phone: 301-404-7100
