Sarah Kuhl: Defying the Odds and Living A Productive Life

Chondrosarcoma Awareness Day is Sunday, February 6. As we approach this date we are posting stories about Chondrosarcoma Warriors defying the odds and winning their battle against this rare bone and soft tissue disease and are also honoring those who lost their battle from this terrible cancer. Sarah Kuhl is a true CS Warrior who is defying the odds. She was diagnosed six years ago with Skull Based Chondroarcoma. She leads a full life as a wife, mother and an Oncology Research Nurse. Sarah has agreed to work with the CS Foundation as our Clinical Research Consultant and help us build the Chondrosarcoma Patient Registry. Please read and share Sarah’s inspirational story below.

The stories we have been sharing with you have been written by the CS Warriors, Caretakers and their family members. Some readers who have medical knowledge of the different types and grades of Chondrosarcoma have been interested in knowing that information with these tributes. We advocate for the importance of knowing your diagnosis including the type and grade of Chondrosarcoma but that information is not always known or understood. It is also important to recognize that every story, every case, every diagnosis of this rare cancer is different and unique. That being said, it is not just the Clinical Researchers, Sarcoma Specialists but we all make a contribution to this cause. It is important to share our stories, learn from each other and contribute to creating better treatment options and ultimately a cure.

Chondrosarcoma Awareness Day: February 6 is our effort to reach out to the public around the globe and educate them about this rare cancer. We ask that you help us get the word out to your family, friends and co-works and join us in the effort to support increased research and clinical trials; by submitting your name and email to our petition:

On February 6, please remember these and other stories of CS Warriors who are living their lives to the fullest and others who lost their battle to this beast. In their honor, please wear a Yellow Ribbon, take pictures wearing the ribbon and post those pictures on social media using #cswecare