October 14, 2021 2:26 pm Published by admin A research project funded by the Bone Cancer Research Trust has found a promising clinical biomarker that offers pathologists an accurate and reproducible test to diagnose and stage chondrosarcoma, informing clinical management and deciding the type of surgery a patient would need. This could also provide a non-invasive way to monitor patients and detect the [...]
October 12, 2021 1:40 am Published by admin NORD Offers Information and Support for Patients of Rare Cancers November 24, 2014 Peter L. Saltonstall CURE, Winter 2014, Volume 13, Issue 4 NORD was founded in 1983 by parents of children with rare diseases. Over the past 30 years, it has become a powerful advocacy voice for all patients with rare diseases, including cancer. [...]
October 12, 2021 1:31 am Published by admin Saavan Patel 1, Ravi S Nunna 1, James S Ryoo 1, Darius Ansari 1, Nauman S Chaudhry 1, Ankit I Mehta 2 For more information: Outcomes and Patterns of Care in Adult Skull Base Chondrosarcoma Patients in the United States – PubMed (nih.gov) Abstract Background: Chondrosarcomas of the skull base are rare intracranial tumors of [...]
October 11, 2021 3:44 pm Published by admin 11 – 17 October 2021, we need your help! 76% of primary bone cancer patients in the UK are misdiagnosed and 14% of cases are in the skull, face and jaw. During #BoneCancerAwareness Week we’re educating dentists, dental healthcare professionals, students and GPs on the signs and symptoms of primary bone cancers and tumours of [...]
October 7, 2021 9:38 pm Published by admin John Gross, M.D., M.S. This website is intended to promote education in bone and soft tissue pathology. Cases are presented in the format of radiologic images paired with scanned microscopic slides for the case. New cases will be uploaded every 8 weeks.The answers to each case and discussion are provided as brief 5-10 minute videos [...]
October 7, 2021 9:14 pm Published by admin Bone Cancer Awareness Week 2021 11 – 17 October 2021, we need your help! 76% of primary bone cancer patients in the UK are misdiagnosed and 14% of cases are in the skull, face and jaw. During #BoneCancerAwareness Week we’re educating dentists, dental healthcare professionals, students and GPs on the signs and symptoms of primary [...]
October 1, 2021 12:28 am Published by admin Sep. 17, 2021TOPIC: Patients & Members, Advocacy, Patient Stories, Voices of Rare Cancer A Message to Chondrosarcoma Patients: Shayna’s Rare Cancer StoryPosted by Rohan Narayanan Shayna had advanced metastatic chondrosarcoma, and her disease progression defied many expert opinions and expectations. In 2015, Shayna was misdiagnosed with scoliosis, and nine months elapsed before she was accurately [...]
September 30, 2021 8:01 pm Published by admin Get Involved, Spread the Word & Hear Stories From Those Impacted [...]
September 29, 2021 12:50 am Published by admin Virtual Dialogue 3: Taking Charge of Your Care Third International Virtual Dialogue The Chondrosarcoma CS Foundation, Inc. held the Third International Forum / Virtual Dialogue featuring a panel of Chondrosarcoma survivors and prominent experts to examine new technologies, medications, and clinical trials, as well as providing information to help Chondrosarcoma patients make informed decisions to [...]
September 15, 2021 4:20 pm Published by admin Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program TUCSON, Ariz. and WASHINGTON, September 15, 2021 — The Rare Disease Cures Accelerator-Data and Analytics Platform initiative (RDCA-DAP ®) officially launched its next phase on Tuesday establishing itself as the leading platform to accelerate rare disease treatment innovation. The launch was part of an [...]
