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Chondrosarcoma CS Foundation, Inc.

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  • 301-352-3042

    Chondrosarcoma Foundation Voluntary Donor Tissue Bank

    Enrollment Information Form

    Thank you for your interest in our study. Specimen donations are important to research in chondrosarcoma and other rare cancers and to the development of new treatments.

    Estimated completion time: approximately 5 minutes

    Eligibility Criteria

    • You have been diagnosed with chondrosarcoma.
    • You are having a surgery or biopsy procedure in the United States.
    • Your procedure is scheduled within six months and no sooner than 72 hours.
    • You can provide informed consent and understand or speak English.
    • Your surgeon agrees to collect the specimen.
    • There is no age limit for this study.

    Information You Will Need

    • Name, phone number, and email address for your physician or oncologist.
    • Name, phone number, and email address for your surgeon.
    • Name, direct phone number, and email address for the staff member coordinating the surgical collection.
    Questions? Call 301-404-7100 or email [email protected].

    Please proceed only if you are eligible and interested in enrolling.

      Demographic Information

      Which method of communication do you prefer?

      Birthday

      What is your biological sex at birth?
      What is your race? Select all that apply.
      What is your ethnicity?

      Address Information

      Chondrosarcoma Information

      What subtype of chondrosarcoma have you been diagnosed with?

      For surgeries and biopsies scheduled within the next six months, but no sooner than 72 hours. Surgeries must be performed in the United States.

      Additional Authorized Information

      If we are unable to get in touch with you, please list an authorized contact person we may contact.

      Diagnosis and Treatment

      Stage at Diagnosis

      In Situ: The cancer cells are only in the layer of cells where they first started and have not invaded nearby tissues.

      Localized: The cancer is invading nearby tissue but remains in the organ where it started.

      Regional: The cancer has grown outside the organ where it started into nearby organs, structures, or lymph nodes.

      Distant: The cancer has spread to distant parts of the body, organs, structures, or lymph nodes.

      Unknown: There is not enough information to determine the stage.

      Current Stage
      Treatments received so far

      Hospital, Cancer Center, or Institution

      Medical Contact Information

      Treating Oncologist

      Treating Surgeon

      Contact for Specimen Collection

      Chondrosarcoma Patient Registry

      We also want to encourage you to complete the surveys in our Chondrosarcoma Patient Registry. It is a Natural History database with self-reported surveys about your treatment and outcomes. The Patient Registry will be included in this study.Initially there are ten surveys to complete, approximately 100 questions and it typically takes less than an hour to complete.

      If you are not already enrolled in the Chondrosarcoma Patient Registry please go to the website: chondrosarcoma.iamrare.org

      Please Support Our Mission

      CS Foundation is committed to educating the public about Chondrosarcoma and improving the treatment, care, and detection of this rare and deadly form of cancer. Please consider supporting our mission today by learning more and making a charitable donation.

      Donate Today

      Corporate Sponsors

      Membership

      Request More Information

      If you would like to learn more about CS Foundation or if you would like to learn more about the resources we provide to patients, families, caregivers, and physicians, please contact us by phone or send us a message.

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