March 18, 2025 7:39 pm Published by admin Servier Pharmaceuticals has initiated a Phase 3 Clinical Trial for Ivosidenib, an IDH1 biomarker inhibitor. Their clinical trial is for patients diagnosed with conventional chondrosarcoma with advanced metastasis. There are about 30 sites globally that are offering the clinical trial looking for 136 patients. They just released a website which provides the details of their [...]
March 7, 2025 7:17 pm Published by admin Chondrosarcoma Patient Registry 2.0 with a new set of follow-up surveys https://chondrosarcoma.iamrare.org We are excited to announce that we’ve received IRB approval to launch a set of new surveys for patients and caregivers who completed the first set of surveys since our initial launch in March 2023. This second set of surveys examines results from [...]
February 28, 2025 5:15 pm Published by admin The Chondrosarcoma Foundation is proud to announce the creation of the Chondrosarcoma Tumor Board, a specialized, multidisciplinary group of medical professionals who treat chondrosarcoma. The tumor board will review cases submitted by physicians/oncologists globally and offer specialized treatment recommendations for chondrosarcoma. What is the Chondrosarcoma Tumor Board? The Chondrosarcoma Tumor Board is a panel of [...]
February 4, 2025 7:24 pm Published by admin This Thursday is Chondrosarcoma Awareness Day, hosted annually on February 6. It will mark Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite all to Join [...]
January 31, 2025 6:41 pm Published by admin Chondrosarcoma Awareness Day is hosted annually on February 6 (less than one week away). It will mark Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite [...]
January 23, 2025 11:46 pm Published by admin Chondrosarcoma Awareness Day is hosted annually on February 6. It will mark Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite all to Join the Fight. [...]
January 16, 2025 5:57 pm Published by admin Chondrosarcoma Awareness Day is hosted annually on February 6. It will mark Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite all to Join the Fight. [...]
January 9, 2025 6:32 pm Published by admin Chondrosarcoma Awareness Day is hosted annually on February 6. It will be Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite all to Join the Fight. [...]
January 2, 2025 6:59 pm Published by admin Happy New Year! I hope that you had a wonderful time celebrating the holidays with family and friends. Chondrosarcoma Awareness Day is hosted annually on February 6. (It will be Shayna Kramer’s heavenly 34th birthday). This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer [...]
December 26, 2024 7:45 pm Published by admin Chondrosarcoma Awareness Day is hosted annually on February 6. (It will be Shayna Kramer’s heavenly 34th birthday). This is our annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. The more attention we create, the more support [...]
