To honor Chondrosarcoma Awareness Day. our family and friends put on our Yellow ribbons wore yellow clothes we went to my daughter Shayna’s grave site this afternoon. My brother Rick drove up from Atlanta, Georgi, my brother Mark, his wife Karen and daughter Kylie from New Jersey. We paid tribute to Shayna, shared stories about [...]
In honor of Chondrosarcoma Awareness Day we are pleased to share this announcement. BOWIE, Maryland, Feb. 6, 2022–The Chondrosarcoma CS Foundation is teaming up with the National Organization for Rare Disorders (NORD) to establish a Chondrosarcoma Patient Registry to advance research, clinical trials and improve the treatment of Chondrosarcoma, a rare bone and soft tissue [...]
Hi, my name is Renee and here is our story. If you have seen the movie Ferris Bueller’s Day off, I jokingly tell people that this is the story of my life. I am the big sister to my baby brother Steve, who I nicknamed “Ferris” many years ago. He’s the guy who is always [...]
In 2020, right after the covid pandemic creeped out into our world, our little family that summer found out that my husband had Conventional Chondrosarcoma Grade 2 in his pelvis. There were some signs of this prior to our E.R. visit including weight loss and a lump on his inner right leg. He also experienced [...]
This Sunday, February 6 is International Chondrosarcoma Awareness Day. Please join us and support all of the Chondrosarcoma Warriors and Families who are Fighting as well as honoring those who lost their battle from this rare bone and soft tissue cancer. Please wear a Yellow Ribbon. Tell everyone you see that you support more research [...]
BOWIE, Maryland, Feb. 1, 2022–The Chondrosarcoma CS Foundation is teaming up with the National Organization for Rare Disorders (NORD) to establish a Chondrosarcoma Patient Registry to advance research, clinical trials and improve the treatment of Chondrosarcoma, a rare bone and soft tissue cancer. The effort is being sponsored by Inhibrx, a California-based biotechnology company. The [...]
FOR IMMEDIATE RELEASE C-Path and the European Joint Programme on Rare Diseases to Expand Global Impact and Partnership PARIS, France and TUCSON, Ariz., U.S., February 1, 2022 — Critical Path Institute (C-Path), an independent global nonprofit organization, and the European Joint Programme on Rare Diseases (EJP RD), an initiative that has received funding from the [...]
Article Targeting the Apoptotic Pathway in Chondrosarcoma.pdf
Chondrosarcoma Awareness Day is just one week away on Sunday, February 6. As we approach this date, we have been posting stories about Chondrosarcoma Warriors defying the odds and winning their battle against this rare bone and soft tissue disease as well as honoring those who lost their battle from this terrible cancer. Our last [...]
Chondrosarcoma Awareness Day is Sunday, February 6. As we approach this date we are posting stories about Chondrosarcoma Warriors defying the odds and winning their battle against this rare bone and soft tissue disease and are also honoring those who lost their battle from this terrible cancer. Sarah Kuhl is a true CS Warrior who [...]