February 23, 2022 9:09 pm Published by admin The Chondrosarcoma Foundation, Inc. will host their fourth International Forum / Virtual Dialogue featuring the following prominent experts to address new innovations, findings and technologies to improve the treatment of Chondrosarcoma. Anthony P. Conley, M.D. will review the clinical trials he conducted using INBRX-109, the medication recently granted orphan-drug designation by the FDA to treat [...]
February 20, 2022 7:46 pm Published by admin About 20% of people with chondrosarcoma responded to the drug (tumor shrinkage by 20%). On average people with CS were on the drug for about 4-5 months before it was deemed ineffective though. In looking at the criteria for CS patients on the trial, it looks as if Grade I and II CS were allowed [...]
February 14, 2022 6:12 pm Published by admin CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care“ Dear SPAEN Members AND FRIENDS! We are happy and proud to announce that CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care“ has been published in Cancers! Patients and patient advocates from Sarcoma Patients EuroNet (SPAEN) and medical experts from the scientifically [...]
February 11, 2022 4:45 pm Published by admin A Study of Anlotinib Combined With or Without PD-1 Antibody on Unresectable High-grade Chondrosarcoma https://www.clinicaltrials.gov/ct2/show/NCT05193188?cond=Chondrosarcoma&draw=2&rank=1 Study of INBRX-109 in Conventional Chondrosarcoma https://www.clinicaltrials.gov/ct2/show/NCT04950075?recrs=abdf&cond=Chondrosarcoma&draw=2&rank=3 Study on Trabectedin in Advanced Rearranged Mesenchymal Chondrosarcoma (ISG-MCS) https://www.clinicaltrials.gov/ct2/show/NCT04305548… Testing the Combination of Belinostat and SGI-110 (Guadecitabine) or ASTX727 for the Treatment of Unresectable and Metastatic Conventional Chondrosarcoma https://www.clinicaltrials.gov/ct2/show/NCT04340843?recrs=abdf&cond=Chondrosarcoma&draw=2&rank=7 AG-120 in People [...]
February 6, 2022 10:24 pm Published by admin To honor Chondrosarcoma Awareness Day. our family and friends put on our Yellow ribbons wore yellow clothes we went to my daughter Shayna’s grave site this afternoon. My brother Rick drove up from Atlanta, Georgi, my brother Mark, his wife Karen and daughter Kylie from New Jersey. We paid tribute to Shayna, shared stories about [...]
February 6, 2022 3:21 pm Published by admin In honor of Chondrosarcoma Awareness Day we are pleased to share this announcement. BOWIE, Maryland, Feb. 6, 2022–The Chondrosarcoma CS Foundation is teaming up with the National Organization for Rare Disorders (NORD) to establish a Chondrosarcoma Patient Registry to advance research, clinical trials and improve the treatment of Chondrosarcoma, a rare bone and soft tissue [...]
February 5, 2022 5:43 pm Published by admin Hi, my name is Renee and here is our story. If you have seen the movie Ferris Bueller’s Day off, I jokingly tell people that this is the story of my life. I am the big sister to my baby brother Steve, who I nicknamed “Ferris” many years ago. He’s the guy who is always [...]
February 5, 2022 5:38 pm Published by admin In 2020, right after the covid pandemic creeped out into our world, our little family that summer found out that my husband had Conventional Chondrosarcoma Grade 2 in his pelvis. There were some signs of this prior to our E.R. visit including weight loss and a lump on his inner right leg. He also experienced [...]
February 4, 2022 1:46 am Published by admin This Sunday, February 6 is International Chondrosarcoma Awareness Day. Please join us and support all of the Chondrosarcoma Warriors and Families who are Fighting as well as honoring those who lost their battle from this rare bone and soft tissue cancer. Please wear a Yellow Ribbon. Tell everyone you see that you support more research [...]
February 1, 2022 8:13 pm Published by admin BOWIE, Maryland, Feb. 1, 2022–The Chondrosarcoma CS Foundation is teaming up with the National Organization for Rare Disorders (NORD) to establish a Chondrosarcoma Patient Registry to advance research, clinical trials and improve the treatment of Chondrosarcoma, a rare bone and soft tissue cancer. The effort is being sponsored by Inhibrx, a California-based biotechnology company. The [...]
