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Chondrosarcoma CS Foundation, Inc.

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    He left with no regrets

    March 24, 2022 3:17 am Published by Comments Off on He left with no regrets

    ‘He left with no regrets.’ Tri-Cities grad with cancer found connection on TikTok, Instagram BY ERIC ROSANE UPDATED MARCH 23, 2022 11:16 AM Friends and family look back on the life of Parker Morgan, a 21-year-old Kennewick native who died this month after a nearly two-year battle with bone cancer. COURTESY OF CHRISSY MORGAN KENNEWICK, [...]


    Conference on Rare Cancers: Great Unmet Medical Needs

    March 23, 2022 6:44 pm Published by Comments Off on Conference on Rare Cancers: Great Unmet Medical Needs

    Reaching out to all rare cancer groups/advocates/patients. April 26, 2022. Virtual & in-person event from Columbia U Herbert Irving Cancer Center, NYC – “Rare Cancers: Great Unmet Medical Needs”. It’s a CME conference for patients/advocates/PAGs (free) and medical professionals (CME) focusing on Advocating for Rare Cancers, Targeted Therapies, Pediatric Cancers, Precision medicine, Immunotherapy, hereditary cancers, [...]


    185 million investment to fast-track treatments for rare and ‘untreatable’ cancers

    March 23, 2022 6:36 pm Published by Comments Off on 185 million investment to fast-track treatments for rare and ‘untreatable’ cancers

    The Precision Oncology Screening Platform Enabling Clinical Trials (PrOSPeCT) will establish Australia as a medical manufacturing hub: building links from research through to the clinic; creating jobs; changing lives. Professor David Thomas Media Release: 17 March 2022 Over the past decade, immunotherapy and other new treatments have transformed outcomes for thousands of Australians diagnosed with [...]


    Registrations are still open for the Virtual Dialogue:: Saturday, April 30 1:00PM – 2:30PM (EST / New York Time)

    March 19, 2022 5:51 pm Published by Comments Off on Registrations are still open for the Virtual Dialogue:: Saturday, April 30 1:00PM – 2:30PM (EST / New York Time)

    Join Us: Registration is Still Open The Chondrosarcoma Foundation, Inc. will host their fourth International Forum / Virtual Dialogue featuring the following prominent experts to address new innovations, findings and technologies to improve the treatment of Chondrosarcoma. Date: Saturday, April 30, 2022 Time: 1:00PM – 2:30PM (Eastern Standard Time / New York) Please register at: [...]


    Clinical Pathology Unknowns

    March 18, 2022 7:37 pm Published by Comments Off on Clinical Pathology Unknowns

    The Johns Hopkins Department of Pathology is proud to announce the launch of a new web site, “Clinical Pathology Unknowns” (https://apps.pathology.jhu.edu/cp/), an interactive clinical pathology educational resource. This web-based educational tool was developed for pathology trainees, non-pathology trainees, laboratory professionals, faculty, practicing pathologists, and anyone who would like to deepen their knowledge of laboratory medicine! [...]


    Register for our Virtual Dialogue scheduled for April 30 at 1:00pm via Zoom

    March 6, 2022 6:09 pm Published by Comments Off on Register for our Virtual Dialogue scheduled for April 30 at 1:00pm via Zoom

    The Chondrosarcoma Foundation, Inc. will host their fourth International Forum / Virtual Dialogue: Moving Forward in Diagnosing and Treating Chondrosarcoma. In the spirit of sharing and passing knowledge about Chondrosarcoma, we invite you to attend our virtual dialogue. The event is free, there are no fees and all we need is for you to go [...]


    Chondrosarcoma Foundation will host the Fourth Virtual Dialogue on Saturday, April 30 at 1:00PM EST / New York time VIA Zoom

    February 23, 2022 9:09 pm Published by Comments Off on Chondrosarcoma Foundation will host the Fourth Virtual Dialogue on Saturday, April 30 at 1:00PM EST / New York time VIA Zoom

    The Chondrosarcoma Foundation, Inc. will host their fourth International Forum / Virtual Dialogue featuring the following prominent experts to address new innovations, findings and technologies to improve the treatment of Chondrosarcoma. Anthony P. Conley, M.D. will review the clinical trials he conducted using INBRX-109, the medication recently granted orphan-drug designation by the FDA to treat [...]


    Phase 2 Study of Dasatinib (Sprycel) in Patients With Alveolar Soft,Part Sarcoma, Chondrosarcoma, Chordoma, Epithelioid,Sarcoma, or Solitary Fibrous Tumor

    February 20, 2022 7:46 pm Published by Comments Off on Phase 2 Study of Dasatinib (Sprycel) in Patients With Alveolar Soft,Part Sarcoma, Chondrosarcoma, Chordoma, Epithelioid,Sarcoma, or Solitary Fibrous Tumor

    About 20% of people with chondrosarcoma responded to the drug (tumor shrinkage by 20%). On average people with CS were on the drug for about 4-5 months before it was deemed ineffective though. In looking at the criteria for CS patients on the trial, it looks as if Grade I and II CS were allowed [...]


    CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care” published

    February 14, 2022 6:12 pm Published by Comments Off on CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care” published

    CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care“ Dear SPAEN Members AND FRIENDS! We are happy and proud to announce that CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care“ has been published in Cancers! Patients and patient advocates from Sarcoma Patients EuroNet (SPAEN) and medical experts from the scientifically [...]


    A list of clinical trials available for CS patients:

    February 11, 2022 4:45 pm Published by Comments Off on A list of clinical trials available for CS patients:

    A Study of Anlotinib Combined With or Without PD-1 Antibody on Unresectable High-grade Chondrosarcoma https://www.clinicaltrials.gov/ct2/show/NCT05193188?cond=Chondrosarcoma&draw=2&rank=1 Study of INBRX-109 in Conventional Chondrosarcoma https://www.clinicaltrials.gov/ct2/show/NCT04950075?recrs=abdf&cond=Chondrosarcoma&draw=2&rank=3 Study on Trabectedin in Advanced Rearranged Mesenchymal Chondrosarcoma (ISG-MCS) https://www.clinicaltrials.gov/ct2/show/NCT04305548… Testing the Combination of Belinostat and SGI-110 (Guadecitabine) or ASTX727 for the Treatment of Unresectable and Metastatic Conventional Chondrosarcoma https://www.clinicaltrials.gov/ct2/show/NCT04340843?recrs=abdf&cond=Chondrosarcoma&draw=2&rank=7 AG-120 in People [...]


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