July 21, 2023 5:08 pm Published by admin The Patient / Family / Caregiver Advisory Board of the Chondrosarcoma Foundation has created a series of Educational Articles dedicated to helping patients who are newly diagnosed, and those seeking a second or even a third opinion. The easy to read articles are designed to provide useful information in helping patients, families and caregivers make [...]
July 5, 2023 6:57 pm Published by admin The Chondrosarcoma Patient Registry creates a platform for patients around the world to strengthen their voices and share information about this rare bone cancer. This global resource will provide data for researchers to use to advance drug development and treatment options and help improve patient care. The patient information that the registry collects will help [...]
June 18, 2023 12:10 am Published by admin Pictures from our local event: Kick CancerOut of the Park at the Bowie Baysox in Prince George’s County, Maryland. We had 50 friends and family show up for Shayna.
June 12, 2023 7:42 pm Published by admin The Chondrosarcoma Foundation in partnership with NORD® launched the Chondrosarcoma Patient Registry on March 1. The Chondrosarcoma Patient Registry creates a platform for patients around the world to strengthen their voices and share information about this rare bone cancer. This global resource will provide data for researchers to use to advance drug development and treatment [...]
June 9, 2023 4:57 pm Published by admin ABSTRACT Purpose: Patients with unresectable/metastatic chondrosarcoma have poor prognoses; conventional chondrosarcoma is associated with a median progression-free survival (PFS) of <4 months after first-line chemotherapy. No standard targeted therapies are available. We present the preclinical characterization of INBRX-109, a third-generation death receptor 5 (DR5) agonist, and clinical findings from a phase 1 trial of INBRX-109 [...]
June 3, 2023 6:41 pm Published by admin By Elizabeth Goldstein-Rice Prepare. Communicate. Find Support. Read our Comprehensive Guide for the Newly Diagnosed There are numerous and important reasons why someone who has been diagnosed with sarcoma should be treated at a center where there is an interdisciplinary medical team that has experience in treating this rare disease. Let’s say you’ve received a [...]
May 20, 2023 7:39 pm Published by admin ANN ARBOR, MI May 9, 2023 – SARC (Sarcoma Alliance for Research Through Collaboration) is proud to announce that it has launched a national, virtual multidisciplinary sarcoma tumor board. As the care of patients with cancer, particularly uncommon cancers such as sarcoma, becomes increasingly complex and therapeutic options become more nuanced, input of multiple expert [...]
May 19, 2023 6:00 pm Published by admin Podcast: From Physician to Patient Dan Hurley, M.D. Dan Hurley, M.D. is an otolaryngologist (Ear, Nose, Throat) residing in Arizona. He was diagnosed with dediffereniated chondrosarcoma, a rare form of bone cancer. While he was preparing to receive chemotherapy, his insurance carrier denied a PET scan. When the decision was eventually overruled, Dr. Hurley had [...]
May 15, 2023 5:42 pm Published by admin This coming Monday, May 22, we are going to do our first analysis of responses to the survey and take a first look at identifying trends and cause-effect relationships. Your responses to the survey questions are vital to this effort. We want to encourage you to complete the survey questions this week so we can [...]
May 12, 2023 6:01 pm Published by admin During the past three years many CS Patients, caregivers, family members and friends have supported the Foundation through their donations and fund-raising activities. We received donations from family members in honor of their lost loved ones to this beast. We have had others like Julie Mathews that supported 5K walk / runs. Lifecycle holdings in [...]
