Author Archives for admin

Mike Snyder: A Pioneer with A Warrior Spirit

January 22, 2023 8:46 pm Published by Comments Off on Mike Snyder: A Pioneer with A Warrior Spirit

We are just two weeks away from hosting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 32nd birthday). This is our international effort to educate the public about this rare bone cancer and to build a coalition to support more research and clinical trials. The more attention we create, the more support we generate. Here [...]


Julie Mathews and her determination to live life to the fullest and fight!

January 10, 2023 8:51 pm Published by Comments Off on Julie Mathews and her determination to live life to the fullest and fight!

We are just four weeks away from hosting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 32nd birthday). This is our international effort to educate the public about this rare bone cancer and to build a coalition to support more research and clinical trials. The more attention we create, the more support we generate. Here [...]


A genetic model for central chondrosarcoma evolution correlates with patient outcome

January 7, 2023 2:24 am Published by Comments Off on A genetic model for central chondrosarcoma evolution correlates with patient outcome

A genetic model for central chondrosarcoma evolution correlates with patient outcome William Cross 1, Iben Lyskjær 1 2, Tom Lesluyes 3, Steven Hargreaves 1, Anna-Christina Strobl 4, Christopher Davies 1 4, Sara Waise 3 5, Shadi Hames-Fathi 1, Dahmane Oukrif 1, Hongtao Ye 4, Fernanda Amary 4, Roberto Tirabosco 4, Craig Gerrand 6, Toby Baker [...]


Amber Sarcone and her drive to succeed and beat chondrosarcoma.

January 3, 2023 7:35 pm Published by Comments Off on Amber Sarcone and her drive to succeed and beat chondrosarcoma.

Happy New Year! With the new year, the Chondrosarcoma Foundation is kicking-off the year by hosting and promoting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 32nd birthday). We ask that you join us in wearing a Yellow Ribbon or a yellow wrist band and post pictures wearing Yellow on social media platforms at #cswecare [...]


Holiday Wishes and New Year Resolutions

December 26, 2022 4:43 pm Published by Comments Off on Holiday Wishes and New Year Resolutions

I would like to wish everyone the best for this holiday season. May you all cherish the moments you have with your family and blessings to you all for a Healthy and Happy New Year. I thank each and every one of you for the caring and support you have shown each other this past [...]


Chondrosarcoma Awareness Day Tribute to Parker Jeffrey Morgan

December 17, 2022 6:01 pm Published by Comments Off on Chondrosarcoma Awareness Day Tribute to Parker Jeffrey Morgan

With Chondrosarcoma Awareness Day: February 6, less than two months away, we want to share stories of our community / our family who provide us with inspiration. Some of our members lost their battle with Chondrosarcoma. Others are surviving, leading productive lives with the help of surgery, radiation, orphan medications and clinical trials. Our first [...]


February 6 is Chondrosarcoma Awareness Day

December 10, 2022 5:38 pm Published by Comments Off on February 6 is Chondrosarcoma Awareness Day

International Chondrosarcoma Awareness Day February 6, 2023 Wear A Yellow Ribbon / Wrist Band and Show Your Support for Chondrosarcoma Research and Clinical Trials As many of you are aware to honor my daughter who passed away from Grade 3 Conventional Chondrosarcoma; we started the Chondrosarcoma Foundation. We also dedicated February 6 (Shayna’s Birthday) as [...]


INBRX-109 Phase 2 Clinical Trial to Treat Unresectable or Metastatic Conventional Chondrosarcoma

November 28, 2022 5:40 pm Published by Comments Off on INBRX-109 Phase 2 Clinical Trial to Treat Unresectable or Metastatic Conventional Chondrosarcoma

Inhibrx has initiated a phase 2 clinical trial to treat unresectable or metastatic conventional chondrosarcoma. The poster was presented at the Connective Tissue Oncology Society (CTOS) in Vancouver, Canada from November 16-19. The results of the phase 1 study indicated stable or reduced metastatic chondrosarcoma from the DR5 antagonist, the agent known as a death [...]


INBRX-109 Phase 2 Study still looking for Patients

November 23, 2022 5:49 pm Published by Comments Off on INBRX-109 Phase 2 Study still looking for Patients

Inhibrx is recruiting for Chondrosarcoma patients to participate in their Phase 2 study of the medication. Presently there are 130 openings for the Phase 2 trial. Summary is listed below, for more details: https://clinicaltrials.gov/ct2/show/NCT04950075?cond=Chondrosarcoma&draw=2&rank=6 Study of INBRX-109 in Conventional Chondrosarcoma ClinicalTrials.gov Identifier: NCT04950075 Recruitment Status : Recruiting First Posted : July 6, 2021 Last Update [...]