Author Archives for admin

Bone Cancer Research Trust kicks off Bone Cancer Awareness Week in the United Kingdom

October 9, 2020 4:14 am Published by Comments Off on Bone Cancer Research Trust kicks off Bone Cancer Awareness Week in the United Kingdom

Bone Cancer Awareness Week 2020 12 – 18 October 2020 76% of primary bone cancer cases in the UK are misdiagnosed. #BoneCancerAwareness Week 2020 is all about educating GPs, Radiologists, Physiotherapists, Pharmacists and Medical Students about the signs and symptoms of primary bone cancer, alongside raising vital awareness amongst the general public. Read on to [...]


Bone Cancer Research Trust Sponsors Free Webinars for Bone Cancer Awareness Week: October 12-18

October 5, 2020 2:00 am Published by Comments Off on Bone Cancer Research Trust Sponsors Free Webinars for Bone Cancer Awareness Week: October 12-18

Free educational webinars for healthcare professionals Register for our free webinars now. 76% of primary bone cancer cases in the UK are misdiagnosed. Throughout Bone Cancer Awareness Week (12 – 18 Oct) we are holding a series of FREE webinars, specifically designed to increase understanding and knowledge of the signs and symptoms of primary bone [...]


Message for Attendees for Virtual Dialogue: Straight Talk About Chondrosarcoma

October 1, 2020 5:46 pm Published by Comments Off on Message for Attendees for Virtual Dialogue: Straight Talk About Chondrosarcoma

Straight Talk About Chondrosarcoma A Virtual Dialogue (Via Zoom) Tuesday, November 17, 2020 7:30pm – 8:30pm EST 1. Progress Report: So far we have 38 Chondrosarcoma Warrior’s and their families registered and many of the registrant’s have submitted their questions in advance. We received 26 questions. Some questions were personal and had some sense of [...]


CS Warrior Shares His Journey with an IDH1 inhibitor, clinical name ivosidenib.

September 19, 2020 12:06 am Published by Comments Off on CS Warrior Shares His Journey with an IDH1 inhibitor, clinical name ivosidenib.

Hello my CS brothers and sisters! I wanted to tell you a story about my journey which might help some of you. Here are some details: –diagnosed in Feb 2017, Grade 1 pelvic CS, spread widely on and around the acetabulum. Offered a hemipelvectomy but refused. –May 2017 started proton radiation at what is now [...]


Chondrosarcoma Foundation Hosts: Straight Talk About Chondrosarcoma.

September 10, 2020 4:51 pm Published by Comments Off on Chondrosarcoma Foundation Hosts: Straight Talk About Chondrosarcoma.

On Tuesday, November 17, 2020 from 7:30pm -8:30pm, the Chondrosarcoma CS Foundation, Inc. will host a virtual dialogue using the zoom platform to reach out to sarcoma experts, and oncologists as well as patients diagnosed with Chondrosarcoma and their family members. The forum is entitled: Straight Talk About Chondrosarcoma. This event will provide an opportunity [...]


Another Clinical Trail to Treat Metastatic Sarcoma

September 8, 2020 7:07 pm Published by Comments Off on Another Clinical Trail to Treat Metastatic Sarcoma

Phase 1 Study of INBRX-109 in Subjects With Locally Advanced or Metastatic Solid Tumors Including Sarcomas https://clinicaltrials.gov/ct2/show/NCT03715933?term=DR5+INBRX109&rank=1 Go to Arm Intervention/treatment Experimental: Dose Escalation INBRX-109 will be escalated (3+3 design) in subjects with locally advanced or metastatic solid tumors including sarcomas. Drug: INBRX-109 – multivalent DR5 agonist antibody The active ingredient of INBRX-109 is a [...]


CS Warrior Shares his Success with Ivosidenib

September 5, 2020 12:52 am Published by Comments Off on CS Warrior Shares his Success with Ivosidenib

Hello my CS brothers and sisters! I wanted to tell you a story about my journey which might help some of you. Here are some details: –diagnosed in Feb 2017, Grade 1 pelvic CS, spread widely on and around the acetabulum. Offered a hemipelvectomy but refused. –May 2017 started proton radiation at what is now [...]


More information on the Phase 2 Clinical Trail to Treat Conventional Chondrosarcoma

September 3, 2020 6:30 pm Published by Comments Off on More information on the Phase 2 Clinical Trail to Treat Conventional Chondrosarcoma

A CS Warrior on the Facebook Chondrosarcoma Support Group entered a new Phase 2 clinical trial yesterday specifically for unresectable and metastatic conventional CS that combines a histone deacetylase inhibitor Belinostat (FDA approved for a type of lymphoma) with an experimental DNA hypomethylating agent Guadecitabine (https://clinicaltrials.gov/ct2/show/study/NCT04340843). The study is currently recruiting at Columbia Medical Center [...]


September is Childhood Cancer Awareness Month

September 2, 2020 1:17 am Published by Comments Off on September is Childhood Cancer Awareness Month

In September, we honor the gold ribbon in recognition of Childhood Cancer Awareness Month! ✨ Did you know cancer is the second leading cause of death in children under the age of 15? In 2020, approximately 11,000 children ages 1-14 will be diagnosed with cancer. Medical and technological advances, however, now provide that about 85% [...]


A Clinical Trail for Unresectable and Metastatic Conventional Chondrosarcoma

September 2, 2020 1:04 am Published by Comments Off on A Clinical Trail for Unresectable and Metastatic Conventional Chondrosarcoma

Testing the Combination of Belinostat and SGI-110 (Guadecitabine) for the Treatment of Unresectable and Metastatic Conventional Chondrosarcoma clinicaltrials.gov Brief Summary: This phase II trial studies how well belinostat and SGI-110 (guadecitabine) work in treating patients with conventional chondrosarcoma that cannot be removed by surgery (unresectable) and has spread to other places in the body (metastatic). [...]