February 20th, 2022

About 20% of people with chondrosarcoma responded to the drug (tumor shrinkage by 20%).

On average people with CS were on the drug for about 4-5 months before it was deemed ineffective though.

In looking at the criteria for CS patients on the…

February 14th, 2022

CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care“

Dear SPAEN Members AND FRIENDS! We are happy and proud to announce that CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma…

February 11th, 2022

A Study of Anlotinib Combined With or Without PD-1 Antibody on Unresectable High-grade Chondrosarcoma
https://www.clinicaltrials.gov/ct2/show/NCT05193188?cond=Chondrosarcoma&draw=2&rank=1

Study of INBRX-109 in Conventional…

February 6th, 2022

To honor Chondrosarcoma Awareness Day. our family and friends put on our Yellow ribbons wore yellow clothes we went to my daughter Shayna’s grave site this afternoon. My brother Rick drove up from Atlanta, Georgi, my brother Mark, his wife Karen and…

In honor of Chondrosarcoma Awareness Day we are pleased to share this announcement.
BOWIE, Maryland, Feb. 6, 2022–The Chondrosarcoma CS Foundation is teaming up with the National Organization for Rare Disorders (NORD) to establish a Chondrosarcoma…

February 5th, 2022

Hi, my name is Renee and here is our story.

If you have seen the movie Ferris Bueller’s Day off, I jokingly tell people that this is the story of my life. I am the big sister to my baby brother Steve, who I nicknamed “Ferris” many years…

In 2020, right after the covid pandemic creeped out into our world, our little family that summer found out that my husband had Conventional Chondrosarcoma Grade 2 in his pelvis. There were some signs of this prior to our E.R. visit including weight…

February 4th, 2022

This Sunday, February 6 is International Chondrosarcoma Awareness Day. Please join us and support all of the Chondrosarcoma Warriors and Families who are Fighting as well as honoring those who lost their battle from this rare bone and soft tissue…

February 1st, 2022

BOWIE, Maryland, Feb. 1, 2022–The Chondrosarcoma CS Foundation is teaming up with the National Organization for Rare Disorders (NORD) to establish a Chondrosarcoma Patient Registry to advance research, clinical trials and improve the treatment of…

FOR IMMEDIATE RELEASE

C-Path and the European Joint Programme on Rare Diseases
to Expand Global Impact and Partnership

PARIS, France and TUCSON, Ariz., U.S., February 1, 2022 — Critical Path Institute (C-Path), an independent global…