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Chondrosarcoma CS Foundation, Inc.

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    Phase 2 Study of Dasatinib (Sprycel) in Patients With Alveolar Soft,Part Sarcoma, Chondrosarcoma, Chordoma, Epithelioid,Sarcoma, or Solitary Fibrous Tumor

    February 20th, 2022About 20% of people with chondrosarcoma responded to the drug (tumor shrinkage by 20%). On average people with CS were on the drug for about 4-5 months before it was deemed ineffective though. In looking at the criteria for CS patients on the...

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    CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care” published

    February 14th, 2022 CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care“ Dear SPAEN Members AND FRIENDS! We are happy and proud to announce that CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma...

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    A list of clinical trials available for CS patients:

    February 11th, 2022A Study of Anlotinib Combined With or Without PD-1 Antibody on Unresectable High-grade Chondrosarcoma https://www.clinicaltrials.gov/ct2/show/NCT05193188?cond=Chondrosarcoma&draw=2&rank=1 Study of INBRX-109 in Conventional...

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    Celebrating Chondrosarcoma Awareness Day

    February 6th, 2022To honor Chondrosarcoma Awareness Day. our family and friends put on our Yellow ribbons wore yellow clothes we went to my daughter Shayna's grave site this afternoon. My brother Rick drove up from Atlanta, Georgi, my brother Mark, his wife Karen and...

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    Chondrosarcoma Foundation, NORD and Inhibrx to Establish New Patient Registry/Natural History Study

    February 6th, 2022In honor of Chondrosarcoma Awareness Day we are pleased to share this announcement. BOWIE, Maryland, Feb. 6, 2022–The Chondrosarcoma CS Foundation is teaming up with the National Organization for Rare Disorders (NORD) to establish a Chondrosarcoma...

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    Renee Lund shares the story of her wonderful brother Steve

    February 5th, 2022 Hi, my name is Renee and here is our story. If you have seen the movie Ferris Bueller’s Day off, I jokingly tell people that this is the story of my life. I am the big sister to my baby brother Steve, who I nicknamed “Ferris” many years...

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    Samantha Shares Her and Her Husband’s Struggle and Their Survival.

    February 5th, 2022In 2020, right after the covid pandemic creeped out into our world, our little family that summer found out that my husband had Conventional Chondrosarcoma Grade 2 in his pelvis. There were some signs of this prior to our E.R. visit including weight...

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    This Sunday, February 6 is International Chondrosarcoma Awareness Day

    February 4th, 2022This Sunday, February 6 is International Chondrosarcoma Awareness Day. Please join us and support all of the Chondrosarcoma Warriors and Families who are Fighting as well as honoring those who lost their battle from this rare bone and soft tissue...

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