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Chondrosarcoma CS Foundation, Inc.

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    Chondrosarcoma: The Clinician and Patient Experience

    The Sarcoma Alliance   Online event Saturday, October 31 • 1:30 PM - 2:30 PM EDT Overview   Join us for an informative session dedicated to Chondrosarcoma. Designed for patients and caregivers. To Register:...

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    Dedication: Jamie Elliot Shuey, a Champion and an Inspiration

    It is with deep sadness that I share that Jamie Elliott passed away on Wednesday, April 15 from complications arising from Chondrosarcoma. Jamie was diagnosed in early 2017 and fought the beast for over 9 years. In November 2025 she called me to let...

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    To all participants in the Chondrosarcoma Patient Registry:

    We just completed an inventory of participants in the Chondrosarcoma Patient Registry and noticed that you are eligible to complete are follow-up surveys. All you have to do is to go back on the registry: https://chondrosarcoma.iamrare.org enter...

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    The Chondrosarcoma Foundation Enters Year Seven with an Ambitious Strategic Plan

    The Chondrosarcoma (CS) Foundation will commemorate its sixth anniversary by continuing to educate the public about this ultra rare bone cancer, advocate for patients fighting the disease, expand the Chondrosarcoma Patient Registry and report on our...

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    Chondrosarcoma Awareness: Engaging Education Can Make A Difference by Shereen Koul

    I’ll never forget the day in third grade when we learned that Katherine Johnson, the brilliant mathematician that played a critical role in the success of the Apollo mission, and her famous quote that would have a lasting effect on me: “Like...

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    Thank You for your support of: Chondrosarcoma Awareness Day

        Just want to send a message of gratitude from me, my family and the Chondrosarcoma Foundation to all those who supported the Awareness campaign. Thank you to those who signed our petition to support research and clinical trials...

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    Chondrosarcoma Awareness Day to Mike Snyder

    Chondrosarcoma Awareness Day February 6, 2026 Show Your Support for Chondrosarcoma Research and Clinical Trials https://csfshayna.org/support-cs-research/ Wear something yellow (Ribbon, Wrist Band) this Friday, February 6   Mike...

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    Chondrosarcoma Awareness Day Tribute to Tommy Leumas

    Chondrosarcoma Awareness Day February 6, 2026 Show Your Support for Chondrosarcoma Research and Clinical Trials https://csfshayna.org/support-cs-research/ Wear something yellow Ribbon/Wrist Band this Friday, February 6 Every February 6, the...

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