Chondrosarcoma: The Clinician and Patient Experience
The Sarcoma Alliance
Online event
Saturday, October 31 • 1:30 PM – 2:30 PM EDT
Overview
Join us for an informative session dedicated to Chondrosarcoma. Designed for patients and caregivers.
To Register: Chondrosarcoma: The Clinician and Patient Experience Tickets, Saturday, October 31 • 1:30 PM – 2:30 PM EDT | Eventbrite
About This Event
The Sarcoma Alliance, in partnership with the Chondrosarcoma Foundation, presents this educational webinar on chondrosarcoma. This session is designed for patients, caregivers, advocates, and healthcare professionals seeking a clearer understanding of the disease across diagnosis, treatment, and survivorship.
Moderator Christina Kosyla (Sarcoma Alliance) will be joined by Professor Robin Jones of The Royal Marsden, who will offer a clinical perspective on chondrosarcoma, including diagnosis, the importance of a sarcoma specialist, treatment options, and the latest in chondrosarcoma research.
Christina will then speak with chondrosarcoma patient Alan Freedle and Alan’s wife, Lynne, about the patient and caregiver experience. Alan and Lynne will share their stories of diagnosis, treatment, challenges of the patient experience, and what has helped them most on this path.
The webinar will conclude with time for a live question and answer session, where attendees will have the chance to ask our speakers questions about diagnosis, treatment, and the future of care for this rare disease.
Date: Saturday, October 31, 2026
Time: 10:30 AM PT / 11:30 AM MT / 12:30 PM CT / 1:30 PM ET (1 hour)
Platform: Zoom (link provided after registration)
Cost: Free
Moderator: Christina Kosyla — Sarcoma Alliance
Physician: Professor Robin Jones — The Royal Marsden
Patient and Caregiver: Alan Freedle, Chondrosarcoma Patient, and Lynne Freedle
Professor Robin Jones is a medical oncologist specialising in the treatment of bone and soft tissue sarcomas and Head of the Sarcoma Unit at The Royal Marsden. He has experience in conducting Phase I, II and III trials, as well as translational studies in sarcomas. Professor Jones trained in medical oncology at The Royal Marsden and between 2010 and 2014 he was Head of the Sarcoma Program at the University of Washington/Fred Hutchinson Cancer Research Center in Seattle. His main research interest focuses on clinical trials and translational research in sarcomas.
Alan Freedle, Chondrosarcoma Patient, was diagnosed with chondrosarcoma in October 2025. His first resection took place that November. Following that resection, he was referred to Atrium Levine in Charlotte, North Carolina, for additional resection and proton radiation, which began in February 2026. He and his wife, Lynne, have been married for five years and have two dogs.
This webinar is made possible with support from Inhibrx.
To learn more about the Sarcoma Alliance and upcoming events, visit: sarcomaalliance.org
To learn more about the Chondrosarcoma Foundation, visit: csfshayna.org
