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Chondrosarcoma CS Foundation, Inc.

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    Uncategorized Posts

    Chondrosarcoma Foundation, NORD and Inhibrx to Establish New Patient Registry/Natural History Study

    February 6th, 2022

    In honor of Chondrosarcoma Awareness Day we are pleased to share this announcement.
    BOWIE, Maryland, Feb. 6, 2022–The Chondrosarcoma CS Foundation is teaming up with the National Organization for Rare Disorders (NORD) to establish a Chondrosarcoma…

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    Renee Lund shares the story of her wonderful brother Steve

    February 5th, 2022

    Hi, my name is Renee and here is our story.

    If you have seen the movie Ferris Bueller’s Day off, I jokingly tell people that this is the story of my life. I am the big sister to my baby brother Steve, who I nicknamed “Ferris” many years…

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    Samantha Shares Her and Her Husband’s Struggle and Their Survival.


    In 2020, right after the covid pandemic creeped out into our world, our little family that summer found out that my husband had Conventional Chondrosarcoma Grade 2 in his pelvis. There were some signs of this prior to our E.R. visit including weight…

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    This Sunday, February 6 is International Chondrosarcoma Awareness Day

    February 4th, 2022

    This Sunday, February 6 is International Chondrosarcoma Awareness Day. Please join us and support all of the Chondrosarcoma Warriors and Families who are Fighting as well as honoring those who lost their battle from this rare bone and soft tissue…

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    Chondrosarcoma Foundation, NORD and Inhibrx to Establish New Patient Registry/Natural History Study

    February 1st, 2022

    BOWIE, Maryland, Feb. 1, 2022–The Chondrosarcoma CS Foundation is teaming up with the National Organization for Rare Disorders (NORD) to establish a Chondrosarcoma Patient Registry to advance research, clinical trials and improve the treatment of…

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    C-Path and the EJP RD to Expand Global Impact and Partnership


    FOR IMMEDIATE RELEASE

    C-Path and the European Joint Programme on Rare Diseases
    to Expand Global Impact and Partnership

    PARIS, France and TUCSON, Ariz., U.S., February 1, 2022 — Critical Path Institute (C-Path), an independent global…

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    Targeting the Apoptotic Pathway in Chondrosarcoma Using,Recombinant Human Apo2L/TRAIL (Dulanermin), a Dual,Proapoptotic Receptor (DR4/DR5) Agonist


    Article Targeting the Apoptotic Pathway in Chondrosarcoma.pdf

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    Kayla Verret: A Mother, A Wife, A Nurse, A Fighter

    January 30th, 2022

    Chondrosarcoma Awareness Day is just one week away on Sunday, February 6. As we approach this date, we have been posting stories about Chondrosarcoma Warriors defying the odds and winning their battle against this rare bone and soft tissue disease…

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    Sarah Kuhl: Defying the Odds and Living A Productive Life

    January 26th, 2022

    Chondrosarcoma Awareness Day is Sunday, February 6. As we approach this date we are posting stories about Chondrosarcoma Warriors defying the odds and winning their battle against this rare bone and soft tissue disease and are also honoring those…

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    Steve Mathews: A Firefighter, Husband, Father Fighting His Own Battle with Chomdrosarcoma

    January 21st, 2022

    Chondrosarcoma Awareness Day is Sunday, February 6. As we approach this date we are posting stories about Chondrosarcoma Warriors defying the odds and winning their battle against this rare bone and soft tissue disease. We are also honoring those…

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