June 3, 2023 6:41 pm Published by admin By Elizabeth Goldstein-Rice Prepare. Communicate. Find Support. Read our Comprehensive Guide for the Newly Diagnosed There are numerous and important reasons why someone who has been diagnosed with sarcoma should be treated at a center where there is an interdisciplinary medical team that has experience in treating this rare disease. Let’s say you’ve received a [...]
May 20, 2023 7:39 pm Published by admin ANN ARBOR, MI May 9, 2023 – SARC (Sarcoma Alliance for Research Through Collaboration) is proud to announce that it has launched a national, virtual multidisciplinary sarcoma tumor board. As the care of patients with cancer, particularly uncommon cancers such as sarcoma, becomes increasingly complex and therapeutic options become more nuanced, input of multiple expert [...]
May 19, 2023 6:00 pm Published by admin Podcast: From Physician to Patient Dan Hurley, M.D. Dan Hurley, M.D. is an otolaryngologist (Ear, Nose, Throat) residing in Arizona. He was diagnosed with dediffereniated chondrosarcoma, a rare form of bone cancer. While he was preparing to receive chemotherapy, his insurance carrier denied a PET scan. When the decision was eventually overruled, Dr. Hurley had [...]
May 15, 2023 5:42 pm Published by admin This coming Monday, May 22, we are going to do our first analysis of responses to the survey and take a first look at identifying trends and cause-effect relationships. Your responses to the survey questions are vital to this effort. We want to encourage you to complete the survey questions this week so we can [...]
May 12, 2023 6:01 pm Published by admin During the past three years many CS Patients, caregivers, family members and friends have supported the Foundation through their donations and fund-raising activities. We received donations from family members in honor of their lost loved ones to this beast. We have had others like Julie Mathews that supported 5K walk / runs. Lifecycle holdings in [...]
May 11, 2023 12:27 am Published by admin BOWIE, Maryland, May 12—The Chondrosarcoma (CS) Foundation will commemorate its third anniversary by continuing to educate the public about this rare bone cancer, advocate for patients fighting the disease and conduct a global natural history study. On May 14, 2020, the CS Foundation was incorporated, six months after Shayna Elise Kramer lost her battle with [...]
April 28, 2023 6:30 pm Published by admin The Chondrosarcoma Foundation in partnership with NORD® launched the Chondrosarcoma Patient Registry on March 1, 2023. The Chondrosarcoma Patient Registry is a platform for patients around the world to strengthen their voices and collectively share information about this rare bone cancer. This global resource will provide data for researchers to use to advance drug development [...]
April 22, 2023 2:25 am Published by admin Journal of Clinical Pathology J Clin Pathol. 2018 Jul; 71(7): 579–583. Published online 2018 Mar 28. doi: 10.1136/jclinpath-2018-205071 PMCID: PMC6204964 PMID: 29593061 Biomarkers of chondrosarcoma Wonju Jeong1 and Ha-Jeong Kim2,3 Abstract Clinical outcome prediction is major concern to patients with cancer. Various molecular markers in various carcinomas have been identified in the past few decades. [...]
April 11, 2023 9:01 pm Published by admin The INBRX 109 Clinical Trials will shortly resume recruiting patients for their Phase 2 Clinical Trial treating patients with Conventional Chondrosarcoma with recurrence or metastasis. Listed below is a response from Inhibrx: We have just released our newest amendment to the protocol for both the Phase 2 and Phase I INBRX-109. These protocols both now [...]
April 7, 2023 8:10 pm Published by admin The Chondrosarcoma Foundation in partnership with NORD® launched the Chondrosarcoma Patient Registry on March 1, a little over one month ago. The registry currently has 60 participants. We want to encourage everyone in the community to participate. The patient information that the registry collects will help give direction to scientists on areas in which to [...]
