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    Bone Cancer Awareness Week 2021

    October 11, 2021 3:44 pm Published by Comments Off on Bone Cancer Awareness Week 2021

    11 – 17 October 2021, we need your help! 76% of primary bone cancer patients in the UK are misdiagnosed and 14% of cases are in the skull, face and jaw. During #BoneCancerAwareness Week we’re educating dentists, dental healthcare professionals, students and GPs on the signs and symptoms of primary bone cancers and tumours of [...]


    John Gross, M.D.; Introduces a New Web Site to Present Bone Pathology Cases

    October 7, 2021 9:38 pm Published by Comments Off on John Gross, M.D.; Introduces a New Web Site to Present Bone Pathology Cases

    John Gross, M.D., M.S. This website is intended to promote education in bone and soft tissue pathology. Cases are presented in the format of radiologic images paired with scanned microscopic slides for the case. New cases will be uploaded every 8 weeks.The answers to each case and discussion are provided as brief 5-10 minute videos [...]


    Bone Cancer Awareness Week Activities

    October 7, 2021 9:14 pm Published by Comments Off on Bone Cancer Awareness Week Activities

    Bone Cancer Awareness Week 2021 11 – 17 October 2021, we need your help! 76% of primary bone cancer patients in the UK are misdiagnosed and 14% of cases are in the skull, face and jaw. During #BoneCancerAwareness Week we’re educating dentists, dental healthcare professionals, students and GPs on the signs and symptoms of primary [...]


    NORD Publishes Shayna’s Rare Cancer Story to Honor Rare Cancer Day

    October 1, 2021 12:28 am Published by Comments Off on NORD Publishes Shayna’s Rare Cancer Story to Honor Rare Cancer Day

    Sep. 17, 2021 TOPIC: Patients & Members, Advocacy, Patient Stories, Voices of Rare Cancer A Message to Chondrosarcoma Patients: Shayna’s Rare Cancer Story Posted by Rohan Narayanan Shayna had advanced metastatic chondrosarcoma, and her disease progression defied many expert opinions and expectations. In 2015, Shayna was misdiagnosed with scoliosis, and nine months elapsed before she [...]


    Today is Rare Cancer Day!

    September 30, 2021 8:01 pm Published by Comments Off on Today is Rare Cancer Day!

     Get Involved, Spread the Word & Hear Stories From Those Impacted ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ [...]


    Videos from the Third International Virtual Dialogue are Ready to be Viewed

    September 29, 2021 12:50 am Published by Comments Off on Videos from the Third International Virtual Dialogue are Ready to be Viewed

    Virtual Dialogue 3: Taking Charge of Your Care Third International Virtual Dialogue The Chondrosarcoma CS Foundation, Inc. held the Third International Forum / Virtual Dialogue featuring a panel of Chondrosarcoma survivors and prominent experts to examine new technologies, medications, and clinical trials, as well as providing information to help Chondrosarcoma patients make informed decisions to [...]


    NORD: Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program

    September 15, 2021 4:20 pm Published by Comments Off on NORD: Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program

    Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program TUCSON, Ariz. and WASHINGTON, September 15, 2021 — The Rare Disease Cures Accelerator-Data and Analytics Platform initiative (RDCA-DAP ®) officially launched its next phase on Tuesday establishing itself as the leading platform to accelerate rare disease treatment innovation. The launch was part of an [...]


    Testing Atezolizumab in Patients With Newly Diagnosed, Unresectable, or Metastatic Clear Cell Sarcoma or Chondrosarcoma

    September 14, 2021 12:42 am Published by Comments Off on Testing Atezolizumab in Patients With Newly Diagnosed, Unresectable, or Metastatic Clear Cell Sarcoma or Chondrosarcoma

    Study Description Go to Brief Summary: This phase II trial studies how well atezolizumab works in treating patients with chondrosarcoma or clear cell sarcoma that is newly diagnosed, cannot be removed by surgery (unresectable), or has spread to other places in the body (metastatic). Immunotherapy with monoclonal antibodies, such as atezolizumab, may help the body’s [...]


    Last Notice: Registration for Virtual Dialogue: This Coming Tuesday, September 14 at 7:30PM EST

    September 9, 2021 5:11 pm Published by Comments Off on Last Notice: Registration for Virtual Dialogue: This Coming Tuesday, September 14 at 7:30PM EST

    Last Notice Chondrosarcoma CS Foundation, Inc. Virtual Dialogue 3: Taking Charge of Your Care Third International Virtual Dialogue (VIA Zoom) Tuesday, September 14, 2021 7:30PM – 9:00PM (Eastern Standard Time / New York) This Event is Free to All that Register Join Us for This Very Informative Event https://csfshayma.org/virtual-dialogue3-registration/ The Chondrosarcoma CS Foundation, Inc. will [...]


    Steppin’ for a Cause!

    August 31, 2021 4:57 pm Published by Comments Off on Steppin’ for a Cause!

    The Chondrosarcoma Foundation is hosting its first fundraising event to bring awareness to Chondrosarcoma: a rare bone and soft tissue cancer. Where: The comfort of your own neighborhood! When: anytime between October 3rd-9th TO LEARN MORE AND REGISTER, CLICK HERE Recruit and Create your 5k Walk or Run where ever you live. Take pictures and [...]


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