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Chondrosarcoma CS Foundation, Inc.

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    Register for our Virtual Dialogue scheduled for April 30 at 1:00pm via Zoom

    The Chondrosarcoma Foundation, Inc. will host their fourth International Forum / Virtual Dialogue: Moving Forward in Diagnosing and Treating Chondrosarcoma.

    In the spirit of sharing and passing knowledge about Chondrosarcoma, we invite you to attend our virtual dialogue. The event is free, there are no fees and all we need is for you to go to the web address listed below and provide your e-mail address so we can send you the zoom link.

    Date: Saturday, April 30, 2022
    Time: 1:00PM – 2:30PM (Eastern Standard Time / New York)

    Please register at:
    https://csfshayna.org/virtual-dialogue4-registration/

    We have prominent experts to address new medications, innovations, findings and technologies to improve the treatment of Chondrosarcoma (see attached flyer for more details).

    Anthony P. Conley, M.D. will review the clinical trials he conducted using INBRX-109, the medication recently granted orphan-drug designation by the FDA to treat conventional chondrosarcoma as well as the future role medications like INBRX-109 will have in treating Chondrosarcoma.

    William Cross, Ph.D. will discuss genetic mutations found in chondrosarcoma cells that may have direct implications for patient outcome; namely that people with a specific mutation combination (in the genes IDH1 and TERT) do worse, hence they should perhaps be given more attention upfront. He discusses the need for testing the presence of these biomarkers following diagnosis, which is done for other cancer types and is easy and cost effective in the modern oncology clinic.

    Janet Mauro will discuss the NORD: IAMRARE® Patient Registry Platform, currently being used by over 40 Foundation members organizations, nonprofits and advocacy groups representing individuals with rare diseases. She will identify the benefits of implementing a Patient Registry / Natural History Study, the type of information collected and how patient-entered data can be used to advance research and treatment. Ms. Mauro will also address concerns about security, privacy, confidentiality and other relevant issues.

    It is important to be informed to address Chondrosarcoma, advance effective care and make informed decisions.

    If you are a Patient, Caretaker or a Medical Practitioner please join us for this very informative forum.