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Chondrosarcoma CS Foundation, Inc.

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    Shine A Light on Sarcoma

    July 1st, 2024July is Sarcoma Awareness Month. We are joining the Sarcoma Foundation of America and the Sarcoma Coalition in the effort to bring awareness to the Public about these Ultra-Rare Cancers. We want to invite everyone to get involved. We would like you...

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    Chondrosarcoma Patient Registry reveals one-third of CS Patients have a Recurrence / Metastasis. Efforts for Prevention are needed.

    June 29th, 2024Chondrosarcoma Patient Registry reveals one-third of CS Patients have a Recurrence / Metastasis; Efforts for Prevention are needed. The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0...

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    Chondrosarcoma Patient Registry reveals only a few Patients have had Gene testing

    June 22nd, 2024The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch we have had over 230 CS Patients participate in the registry and we just completed our first full data...

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    The Results Are In: Chondrosarcoma Patient Registry Result #2 Diagnosis

    June 15th, 2024The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform and the 44th Foundation to have a Patient Registry in the platform itself. In February 2023, we had a soft launch with a few...

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    Chondrosarcoma Patient Registry: The Results Are In

    June 8th, 2024The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform and the 44th Foundation to have a Patient Registry in the platform itself. We were approved by NorthStar IRB in early February...

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    Chondrosarcoma Foundation Enters Fifth Year, Marks Progress

    May 13th, 2024The Chondrosarcoma (CS) Foundation will commemorate its fourth anniversary by continuing to educate the public about this rare bone cancer, advocate for patients fighting the disease and will report on a global natural history study. On May 14,...

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    Rapamycin causes growth arrest and inhibition of invasion in human chondrosarcoma cells

    May 2nd, 2024Rapamycin causes growth arrest and inhibition of invasion in human chondrosarcoma cells Jian Song1, Xiaobo Wang2, Jiaxue Zhu3, Jun Liu4 1Department of Orthopaedics, Shandong Jining No.1 People’s Hospital, Jining, Shandong, 272000, China;...

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    Dan Hurley, M.D. Endowment Fund

    April 24th, 2024Daniel Brian Hurley, M.D. passed away August 3, 2023, from dedifferentiated chondrosarcoma at age 50 surrounded by his loved ones. His wife Traci and their three kids Rachel, Sam, and Sarah were the light of his life. His family, including his...

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