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Chondrosarcoma CS Foundation, Inc.

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    Uncategorized Posts

    Kick Cancer Out of he Park

    June 18th, 2023

    Pictures from our local event: Kick CancerOut of the Park at the Bowie Baysox in Prince George’s County, Maryland. We had 50 friends and family show up for Shayna.

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    A Sneak Peek at the Chondrosarcoma Patient Registry: Indications to Advance the Diagnostic Protocol

    June 12th, 2023

    The Chondrosarcoma Foundation in partnership with NORD® launched the Chondrosarcoma Patient Registry on March 1. The Chondrosarcoma Patient Registry creates a platform for patients around the world to strengthen their voices and share information…

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    Preclinical Characterization and Phase 1 Trial Results of INBRX-109

    June 9th, 2023

    ABSTRACT
    Purpose: Patients with unresectable/metastatic chondrosarcoma have poor prognoses; conventional chondrosarcoma is associated with a median progression-free survival
    (PFS) of <4 months after first-line chemotherapy. No standard targeted…

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    The Importance of Treatment at a Specialty Center for Sarcomas

    June 3rd, 2023

    By Elizabeth Goldstein-Rice

    Prepare. Communicate. Find Support.

    Read our Comprehensive Guide for the Newly Diagnosed

    There are numerous and important reasons why someone who has been diagnosed with sarcoma should be treated at a center where…

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    SARC Launches National Virtual Multidisciplinary Tumor Board for Sarcoma

    May 20th, 2023

    ANN ARBOR, MI May 9, 2023 – SARC (Sarcoma Alliance for Research Through Collaboration) is proud to announce that it has launched a national, virtual multidisciplinary sarcoma tumor board.

    As the care of patients with cancer, particularly uncommon…

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    Podcast with Physician and CS Patient Dan Hurley on Getting your Care Authorized by Insurance

    May 19th, 2023

    Podcast: From Physician to Patient
    Dan Hurley, M.D.

    Dan Hurley, M.D. is an otolaryngologist (Ear, Nose, Throat) residing in Arizona. He was diagnosed with dediffereniated chondrosarcoma, a rare form of bone cancer. While he was preparing to receive…

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    Join Us in Taking A First Look at the Chondrosarcoma Patient Registry

    May 15th, 2023

    This coming Monday, May 22, we are going to do our first analysis of responses to the survey and take a first look at identifying trends and cause-effect relationships. Your responses to the survey questions are vital to this effort. We want to…

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    Chondrosarcoma Foundation’s Third Anniversary Shows Appreciation to It’s Donors, Supporters and Partners

    May 12th, 2023

    During the past three years many CS Patients, caregivers, family members and friends have supported the Foundation through their donations and fund-raising activities. We received donations from family members in honor of their lost loved ones to…

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    Chondrosarcoma Foundation Enters Fourth Year, Marks Progress

    May 11th, 2023

    BOWIE, Maryland, May 12—The Chondrosarcoma (CS) Foundation will commemorate its third anniversary by continuing to educate the public about this rare bone cancer, advocate for patients fighting the disease and conduct a global natural history…

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    Update on Chondrosarcoma Patient Registry

    April 28th, 2023

    The Chondrosarcoma Foundation in partnership with NORD® launched the Chondrosarcoma Patient Registry on March 1, 2023. The Chondrosarcoma Patient Registry is a platform for patients around the world to strengthen their voices and collectively share…

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