Brenda Segelken, shares her story of Chondrosarcoma

Fourth Tribute for Chondrosarcoma Awareness Day Two weeks away from hosting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 33rd birthday). This is our international effort to educate the public about this rare bone cancer and to build a coalition to support more research and clinical trials. The more attention we create, the more support we generate.

Join the Fight:

  • Wearing something Yellow on February 6 and post pictures wearing Yellow on social media platforms using the hashtag: #cswecare #chondrosarcoma #chondrosarcomafoundation
  • Reach out and educate your family, friends and co-workers about chondrosarcoma, share these tributes and help them understand that we need to bring awareness to fight this deadly beast and encourage them to join us by simply going to our website to add their name and email address to our petition:

In addition, we use Chondrosarcoma Awareness Day: February 6, to share stories of our community / our family who provide us with inspiration. Each week before February 6, we share a new story about a member of our community. Some of our members lost their battle with Chondrosarcoma, others are surviving, leading productive lives with the help of surgery, radiation, orphan medications and clinical trials. Last week, we paid tribute to Fintan McDonald, a firefighter, a husband and a father from Longford, Ireland. Fintan dedicated his life to saving life and property and lost his life to fighting chondrosarcoma this past April.

This week, we pay tribute to Brenda Segelken from Du Quoin, Illinois. Brenda has had a life-long struggle starting at 18 months with Osteochondromotosis. In 2017, she tripped resulting in an injury to her hip and the discovery of chondrosarcoma. Currently, Brenda has No Evidence of Recurring Disease (NERD). She enjoys life with her many talents including art, sewing, gardening and judging Pomeranian’s. Brenda was one of our first volunteers and offered her talent and skill as a graphic artist to design our first flyers for the Foundation on Chondrosarcoma Awareness Day and our Virtual Dialogues. She remains active as one of our advisory board members.

Please take a few minutes to read our tribute honoring Brenda Segelken.