Dan Hurley, M.D. was a member of our Patient / Family Advisory Board and wrote the publication on Insurance Authorization and Getting Your Care Approved (see attached). Dan lost his battle with Chondrosarcoma this past Thursday, August 3. One of his colleagues: Ron Howrigon wrote the commentary below. The Story of Dr. Dan Hurley I [...]
Future Initiatives in the Diagnosis and Treatment of Chondrosarcoma Chondrosarcoma Foundation Fifth International Virtual Dialogue Wednesday, October 4 from 7:00PM – 9:00PM EST / New York time via Zoom. Registration: https://csfshayna.org/virtual-dialogue5-registration We are bringing together prominent sarcoma experts and leaders to address new innovations, findings and technologies to improve the treatment of chondrosarcoma and invite [...]
> Please join us on October 21, 2023 at 10:00 at Allen’s Pond for the Third Annual Steppin’ For A Cause. 5k Run/Walk to Support Reasearch for Chondrosarcoma. The Chondrosarcoma Foundation is dedicated to legacy of Shayna Kramer. Registration will be $25. Keep an eye out for information regarding registration on Eventbrite. We hope you [...]
We need you to share your journey and help progress research in chondrosarcoma. Your participation is essential. The Chondrosarcoma Patient Registry creates a platform for patients around the world to strengthen their voices and share information about this rare bone cancer. This global resource will provide data for researchers to use to advance drug development [...]
The Patient / Family / Caregiver Advisory Board of the Chondrosarcoma Foundation has created a series of Educational Articles dedicated to helping patients who under treatment for Chondrosarcoma or any other Sarcoma. The easy to read articles are designed to provide useful information in helping patients, families and caregivers make critical medical decisions. The second [...]
The Patient / Family / Caregiver Advisory Board of the Chondrosarcoma Foundation has created a series of Educational Articles dedicated to helping patients who are newly diagnosed, and those seeking a second or even a third opinion. The easy to read articles are designed to provide useful information in helping patients, families and caregivers make [...]
The Chondrosarcoma Patient Registry creates a platform for patients around the world to strengthen their voices and share information about this rare bone cancer. This global resource will provide data for researchers to use to advance drug development and treatment options and help improve patient care. The patient information that the registry collects will help [...]
Pictures from our local event: Kick CancerOut of the Park at the Bowie Baysox in Prince George’s County, Maryland. We had 50 friends and family show up for Shayna.
The Chondrosarcoma Foundation in partnership with NORD® launched the Chondrosarcoma Patient Registry on March 1. The Chondrosarcoma Patient Registry creates a platform for patients around the world to strengthen their voices and share information about this rare bone cancer. This global resource will provide data for researchers to use to advance drug development and treatment [...]
ABSTRACT Purpose: Patients with unresectable/metastatic chondrosarcoma have poor prognoses; conventional chondrosarcoma is associated with a median progression-free survival (PFS) of <4 months after first-line chemotherapy. No standard targeted therapies are available. We present the preclinical characterization of INBRX-109, a third-generation death receptor 5 (DR5) agonist, and clinical findings from a phase 1 trial of INBRX-109 [...]