September 21, 2024 5:42 pm Published by admin The Chondrosarcoma Foundation will present the findings of their first data analysis through Poster Presentations of the Chondrosarcoma Patient Registry at two upcoming medical conferences. The National Organization for Rare Diseases (NORD), National Summit is scheduled for Sunday October 20 – Tuesday, October 22 in Washington, DC. We have also been approved to present a [...]
September 13, 2024 6:44 pm Published by admin Please join us on Saturday October 26 at 11:00am at Allen Pond in Bowie, Md as we honor Shayna Kramer’s legacy for our 4th Annual Steppin’ for the Cause 5K Walk / Run. Tickets are $30 and we are commemorating the occasion with T-shirts. To buy a ticket go to: https://www.eventbrite.com/…/steppin-for-a-cause… If you cannot be [...]
September 5, 2024 4:40 pm Published by admin The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to those who are also suffering from the debilitating effects of chondrosarcoma both physically and mentally. Data from our Chondrosarcoma Patient Registry indicates that the quality of [...]
August 20, 2024 4:17 pm Published by admin The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the results of our first full data analysis from the data collected from 169 participants [...]
August 13, 2024 3:55 pm Published by admin Using a different method (Time to Event) to determine the impact Diagnosis / Misdiagnosis has on Care. The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 chondrosarcoma patients participate in the registry, and we [...]
August 3, 2024 5:02 pm Published by admin The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the results of our first full data analysis from the data collected from 169 participants [...]
July 28, 2024 9:05 pm Published by admin Chondrosarcoma Patient Registry Examines Self-report Results of Traditional Chemotherapy. The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023 we have had over 230 CS Patients participate in the registry and we are reporting the results of our first full [...]
July 20, 2024 6:30 pm Published by admin Chondrosarcoma Patient Registry indicates only a small group of Chondrosarcoma Patients had Immunotherapy with mixed results The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023 we have had over 230 CS Patients participate in the registry and we just completed [...]
July 13, 2024 7:02 pm Published by admin Chondrosarcoma Patient Registry indicates Radiation therapy is an effective Post Surgical Treatment Intervention in over a third of CS Patients. The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch we have had over 230 CS Patients participate in the registry and we just completed [...]
July 5, 2024 8:31 pm Published by admin Chondrosarcoma Patient Registry confirms Surgery is the first and most utilized Treatment Intervention for Chondrosarcoma The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch we have had over 230 CS Patients participate in the registry and we just completed our first full data analysis [...]
