July 28, 2024 9:05 pm Published by admin Chondrosarcoma Patient Registry Examines Self-report Results of Traditional Chemotherapy. The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023 we have had over 230 CS Patients participate in the registry and we are reporting the results of our first full [...]
July 20, 2024 6:30 pm Published by admin Chondrosarcoma Patient Registry indicates only a small group of Chondrosarcoma Patients had Immunotherapy with mixed results The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023 we have had over 230 CS Patients participate in the registry and we just completed [...]
July 13, 2024 7:02 pm Published by admin Chondrosarcoma Patient Registry indicates Radiation therapy is an effective Post Surgical Treatment Intervention in over a third of CS Patients. The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch we have had over 230 CS Patients participate in the registry and we just completed [...]
July 5, 2024 8:31 pm Published by admin Chondrosarcoma Patient Registry confirms Surgery is the first and most utilized Treatment Intervention for Chondrosarcoma The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch we have had over 230 CS Patients participate in the registry and we just completed our first full data analysis [...]
July 1, 2024 4:53 pm Published by admin July is Sarcoma Awareness Month. We are joining the Sarcoma Foundation of America and the Sarcoma Coalition in the effort to bring awareness to the Public about these Ultra-Rare Cancers. We want to invite everyone to get involved. We would like you to join us to “Shine A Light on Sarcoma.” Simply get a Yellow [...]
June 29, 2024 7:31 pm Published by admin Chondrosarcoma Patient Registry reveals one-third of CS Patients have a Recurrence / Metastasis; Efforts for Prevention are needed. The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch we have had over 230 CS Patients participate in the registry and we just completed our first [...]
June 22, 2024 5:08 pm Published by admin The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch we have had over 230 CS Patients participate in the registry and we just completed our first full data analysis from the data collected from 169 participants who completed all of the surveys in the [...]
June 15, 2024 7:01 pm Published by admin The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform and the 44th Foundation to have a Patient Registry in the platform itself. In February 2023, we had a soft launch with a few board members participating in early February 2023 and we addressed some errors and made [...]
June 8, 2024 6:36 pm Published by admin The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform and the 44th Foundation to have a Patient Registry in the platform itself. We were approved by NorthStar IRB in early February 2023, had a soft launch with a few board members participating in early February 2023 [...]
May 13, 2024 5:12 pm Published by admin The Chondrosarcoma (CS) Foundation will commemorate its fourth anniversary by continuing to educate the public about this rare bone cancer, advocate for patients fighting the disease and will report on a global natural history study. On May 14, 2020, the CS Foundation was incorporated, six months after Shayna Elise Kramer lost her battle with Chondrosarcoma. [...]
