June 28, 2025 5:29 pm Published by admin USA Pickleball is the National Governing body for the sport of pickleball in the US. It provides players with official rules, tournaments, rankings and promotional materials. Jamie Elliott, a pickleball champion, an ambassador to USA Pickleball and a patient diagnosed with Dedifferentiated Chondrosarcoma reached out to USA Pickleball to initiate a Public Relations campaign for [...]
May 19, 2025 6:56 pm Published by admin Video Tribute to Mike Snyder We invite you to watch a video tribute to Mike Snyder, who passed away on April 26. Description: Mike Snyder a Founding board member of the Chondrosarcoma Foundation shares his life journey, challenges with this ultra rare bone cancer as well as straightforward advice for Chondrosarcoma survivors. https://csfshayna.org/dedication-videos/mike
May 12, 2025 4:36 pm Published by admin The Chondrosarcoma (CS) Foundation will commemorate its fifth anniversary by continuing to educate the public about this rare bone cancer, advocate for patients fighting the disease and will report on their global natural history study. On May 14, 2020, the CS Foundation was incorporated, six months after Shayna Elise Kramer lost her battle with Chondrosarcoma. [...]
May 1, 2025 1:49 am Published by admin It is with a broken heart that I report to you the passing of my dear friend and founding foundation board member: Mike Snyder. In his case it was not chondrosarcoma that took his life but he passed away from a second heart attack this past Saturday, April 26. He was in the process of [...]
April 11, 2025 2:04 pm Published by admin John Gross, M.D. is a Faculty Associate professor, and bone and soft tissue surgical pathologist at Johns Hopkins University in Baltimore, Maryland. He is also one of the founding board members of the Chondrosarcoma Foundation and has been instrumental and inspirational in building the Foundation as well as establishing our mission and vision and offering [...]
March 27, 2025 12:42 am Published by admin Genomic Characterization of Chondrosarcoma Reveals Potential Therapeutic Targets Michael J. Wagner, MD; Erica M. Pimenta, MD, PhD1 ; Nathan W. Sweeney, PhD ; Elizabeth T. Loggers, MD, PhD; Jesse L. Roberts, MD; Elyse Brinkman, MD; Eleanor Y. Chen, MD, PhD ; Robert Ricciotti, MD; Candace L. Haddox, MD; Rachel Berg, MS,; Binyam Yilma, MPH; Melissa [...]
March 18, 2025 7:39 pm Published by admin Servier Pharmaceuticals has initiated a Phase 3 Clinical Trial for Ivosidenib, an IDH1 biomarker inhibitor. Their clinical trial is for patients diagnosed with conventional chondrosarcoma with advanced metastasis. There are about 30 sites globally that are offering the clinical trial looking for 136 patients. They just released a website which provides the details of their [...]
March 7, 2025 7:17 pm Published by admin Chondrosarcoma Patient Registry 2.0 with a new set of follow-up surveys https://chondrosarcoma.iamrare.org We are excited to announce that we’ve received IRB approval to launch a set of new surveys for patients and caregivers who completed the first set of surveys since our initial launch in March 2023. This second set of surveys examines results from [...]
February 28, 2025 5:15 pm Published by admin The Chondrosarcoma Foundation is proud to announce the creation of the Chondrosarcoma Tumor Board, a specialized, multidisciplinary group of medical professionals who treat chondrosarcoma. The tumor board will review cases submitted by physicians/oncologists globally and offer specialized treatment recommendations for chondrosarcoma. What is the Chondrosarcoma Tumor Board? The Chondrosarcoma Tumor Board is a panel of [...]
February 4, 2025 7:24 pm Published by admin This Thursday is Chondrosarcoma Awareness Day, hosted annually on February 6. It will mark Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite all to Join [...]
