I want to wish everyone the best for this holiday season. May you all cherish the moments with your family and blessings to you all for a healthy (Pain-free) holiday season and Happy New Year. I am amazed by the caring and compassion you have for each other and for everyone that shares their journey. [...]
Editor’s Note: This story was published last year, before the murder of UnitedHealthcare’s chief executive, which is drawing renewed attention to how the insurance industry denies care to patients. After experiencing mysterious hip and back pain for about six months, Dan Hurley finally went to see an orthopedist in December 2021. The diagnosis, after an [...]
The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to those who are also suffering from the debilitating effects of chondrosarcoma both physically and mentally. Data from our Chondrosarcoma Patient Registry indicates that the quality of [...]
The videos from Virtual Dialogue 6: Improving Stress, Anxiety, Depression and the Quality of Life are posted on the Chondrosarcoma Web Site. Go to: https://csfshayna.org/virtual-dialogue6-improving…/ Please feel free to share the link with others. We are planning to host two Virtual Support Groups, one for CS Warriors and one for Family / Caregivers and will [...]
Check out the pictures from Steppin’ for the Cause, the Chondrosarcoma Foundation’s 4th Annual 5K Charity Walk / Run held at Allen Pond, Bowie, Md on October 26. Go to our Facebook page: https://www.facebook.com/groups/1213169615757418
The Chondrosarcoma Foundation had the opportunity to share the results of their first data analysis of the Chondrosarcoma Patient Registry at the NORD: National Organization for Rare Disorders Breakthrough Summit held October 20-22 in Washington, DC. The three-day conference was attended by over 900 attendees representing government health agencies, industry leaders, pharmaceutical companies, academic researchers, [...]
Wednesday, October 30, 2024, from 7:00pm – 9:00pm (EST/New York time) VIA Zoom. Please register at: https://csfshayna.org/virtual-dialogue6-registration There is still time to register for this event. The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to [...]
The Chondrosarcoma Foundation will present the findings of their first data analysis through Poster Presentations of the Chondrosarcoma Patient Registry at two upcoming medical conferences. The National Organization for Rare Diseases (NORD), National Summit is scheduled for Sunday October 20 – Tuesday, October 22 in Washington, DC. We have also been approved to present a [...]
Please join us on Saturday October 26 at 11:00am at Allen Pond in Bowie, Md as we honor Shayna Kramer’s legacy for our 4th Annual Steppin’ for the Cause 5K Walk / Run. Tickets are $30 and we are commemorating the occasion with T-shirts. To buy a ticket go to: https://www.eventbrite.com/…/steppin-for-a-cause… If you cannot be [...]
The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to those who are also suffering from the debilitating effects of chondrosarcoma both physically and mentally. Data from our Chondrosarcoma Patient Registry indicates that the quality of [...]