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    Even with Chondrosarcoma nothing keeps Jamie down

    February 4, 2025 7:24 pm Published by Comments Off on Even with Chondrosarcoma nothing keeps Jamie down

    This Thursday is Chondrosarcoma Awareness Day, hosted annually on February 6. It will mark Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite all to Join [...]


    Ken Pilarski: The Concrete Man

    January 31, 2025 6:41 pm Published by Comments Off on Ken Pilarski: The Concrete Man

    Chondrosarcoma Awareness Day is hosted annually on February 6 (less than one week away). It will mark Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite [...]


    Tribute #5 Roger Petersen A Shining Example to his family, friends and his community

    January 23, 2025 11:46 pm Published by Comments Off on Tribute #5 Roger Petersen A Shining Example to his family, friends and his community

    Chondrosarcoma Awareness Day is hosted annually on February 6. It will mark Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite all to Join the Fight. [...]


    Tribute 4: Rachel Moss, she fought her battle for herself and others.

    January 16, 2025 5:57 pm Published by Comments Off on Tribute 4: Rachel Moss, she fought her battle for herself and others.

    Chondrosarcoma Awareness Day is hosted annually on February 6. It will mark Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite all to Join the Fight. [...]


    Chondrosarcoma Awareness Day Tribute 3: Joseph Kalil

    January 9, 2025 6:32 pm Published by Comments Off on Chondrosarcoma Awareness Day Tribute 3: Joseph Kalil

    Chondrosarcoma Awareness Day is hosted annually on February 6. It will be Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite all to Join the Fight. [...]


    Nicole serves our Country while battling EMC.

    January 2, 2025 6:59 pm Published by Comments Off on Nicole serves our Country while battling EMC.

    Happy New Year! I hope that you had a wonderful time celebrating the holidays with family and friends. Chondrosarcoma Awareness Day is hosted annually on February 6. (It will be Shayna Kramer’s heavenly 34th birthday). This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer [...]


    First Chondrosarcoma Awareness Day Tribute: Ryan Ladd fighting Chondrosarcoma using a 3-D Printer

    December 26, 2024 7:45 pm Published by Comments Off on First Chondrosarcoma Awareness Day Tribute: Ryan Ladd fighting Chondrosarcoma using a 3-D Printer

    Chondrosarcoma Awareness Day is hosted annually on February 6. (It will be Shayna Kramer’s heavenly 34th birthday). This is our annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. The more attention we create, the more support [...]


    Holiday Wishes and New Year Programs to Address Unmet Needs

    December 16, 2024 5:27 pm Published by Comments Off on Holiday Wishes and New Year Programs to Address Unmet Needs

    I want to wish everyone the best for this holiday season. May you all cherish the moments with your family and blessings to you all for a healthy (Pain-free) holiday season and Happy New Year. I am amazed by the caring and compassion you have for each other and for everyone that shares their journey. [...]


    Delay’ and ‘Deny’: The Outrage Over Prior Authorization An insurance practice buries doctors in paper work, sometimes with disastrous results.

    December 12, 2024 2:30 am Published by Comments Off on Delay’ and ‘Deny’: The Outrage Over Prior Authorization An insurance practice buries doctors in paper work, sometimes with disastrous results.

    Editor’s Note: This story was published last year, before the murder of UnitedHealthcare’s chief executive, which is drawing renewed attention to how the insurance industry denies care to patients. After experiencing mysterious hip and back pain for about six months, Dan Hurley finally went to see an orthopedist in December 2021. The diagnosis, after an [...]


    Chondrosarcoma Foundation Hosts Support Groups to Address,, Anxiety, Stress and Depression

    November 25, 2024 4:48 pm Published by Comments Off on Chondrosarcoma Foundation Hosts Support Groups to Address,, Anxiety, Stress and Depression

    The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to those who are also suffering from the debilitating effects of chondrosarcoma both physically and mentally. Data from our Chondrosarcoma Patient Registry indicates that the quality of [...]