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Chondrosarcoma CS Foundation, Inc.

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    Insights from the NORD Summit on the Chondrosarcoma Patient Registry

    October 25th, 2024The Chondrosarcoma Foundation had the opportunity to share the results of their first data analysis of the Chondrosarcoma Patient Registry at the NORD: National Organization for Rare Disorders Breakthrough Summit held October 20-22 in Washington,...

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    Registration is open for Chondrosarcoma Foundation Virtual Dialogue to Address Anxiety, Stress and Depression and Quality of Life

    October 22nd, 2024Wednesday, October 30, 2024, from 7:00pm - 9:00pm (EST/New York time) VIA Zoom. Please register at: https://csfshayna.org/virtual-dialogue6-registration There is still time to register for this event. The Chondrosarcoma Foundation has had many...

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    Chondrosarcoma Foundation will present at Upcoming Medical Events

    September 21st, 2024The Chondrosarcoma Foundation will present the findings of their first data analysis through Poster Presentations of the Chondrosarcoma Patient Registry at two upcoming medical conferences. The National Organization for Rare Diseases (NORD),...

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    Steppin’ for the Cause on October 26 at 11:00am Allen Pond Bowie, Md

    September 13th, 2024Please join us on Saturday October 26 at 11:00am at Allen Pond in Bowie, Md as we honor Shayna Kramer's legacy for our 4th Annual Steppin' for the Cause 5K Walk / Run. Tickets are $30 and we are commemorating the occasion with T-shirts. To buy a...

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    Chondrosarcoma Foundation Hosts Virtual Dialogue to Address Anxiety, Stress and Depression

    September 5th, 2024The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to those who are also suffering from the debilitating effects of...

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    Quality of Life Measures for Chondrosarcoma Patients

    August 20th, 2024The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the...

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    How Diagnosis is Critical to Proper Treatment of Chondrosarcoma

    August 13th, 2024Using a different method (Time to Event) to determine the impact Diagnosis / Misdiagnosis has on Care. The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on...

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    More Self-reports are needed for Prescribed or Experimental Medications

    August 3rd, 2024The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the...

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