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Chondrosarcoma CS Foundation, Inc.

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    Chondrosarcoma Foundation Hosts Virtual Dialogue to Address Anxiety, Stress and Depression

    September 5th, 2024The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to those who are also suffering from the debilitating effects of...

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    Quality of Life Measures for Chondrosarcoma Patients

    August 20th, 2024The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the...

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    How Diagnosis is Critical to Proper Treatment of Chondrosarcoma

    August 13th, 2024Using a different method (Time to Event) to determine the impact Diagnosis / Misdiagnosis has on Care. The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on...

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    More Self-reports are needed for Prescribed or Experimental Medications

    August 3rd, 2024The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the...

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    Patient Registry shows mixed results for using chemotherapy non-conventional CS patients

    July 28th, 2024Chondrosarcoma Patient Registry Examines Self-report Results of Traditional Chemotherapy. The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023...

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    Chondrosarcoma Patient Registry indicates Immunotherapy has mixed results

    July 20th, 2024Chondrosarcoma Patient Registry indicates only a small group of Chondrosarcoma Patients had Immunotherapy with mixed results The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform....

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    Chondrosarcoma Patient Registry indicates Radiation therapy is an effective Post Surgical Treatment Intervention

    July 13th, 2024Chondrosarcoma Patient Registry indicates Radiation therapy is an effective Post Surgical Treatment Intervention in over a third of CS Patients. The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient...

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    Chondrosarcoma Patient Registry confirms Surgery is the First and most utilized Treatment Intervention for Chondrosarcoma

    July 5th, 2024Chondrosarcoma Patient Registry confirms Surgery is the first and most utilized Treatment Intervention for Chondrosarcoma The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform....

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