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Chondrosarcoma CS Foundation, Inc.

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    More Self-reports are needed for Prescribed or Experimental Medications

    August 3rd, 2024The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the...

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    Patient Registry shows mixed results for using chemotherapy non-conventional CS patients

    July 28th, 2024Chondrosarcoma Patient Registry Examines Self-report Results of Traditional Chemotherapy. The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023...

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    Chondrosarcoma Patient Registry indicates Immunotherapy has mixed results

    July 20th, 2024Chondrosarcoma Patient Registry indicates only a small group of Chondrosarcoma Patients had Immunotherapy with mixed results The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform....

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    Chondrosarcoma Patient Registry indicates Radiation therapy is an effective Post Surgical Treatment Intervention

    July 13th, 2024Chondrosarcoma Patient Registry indicates Radiation therapy is an effective Post Surgical Treatment Intervention in over a third of CS Patients. The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient...

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    Chondrosarcoma Patient Registry confirms Surgery is the First and most utilized Treatment Intervention for Chondrosarcoma

    July 5th, 2024Chondrosarcoma Patient Registry confirms Surgery is the first and most utilized Treatment Intervention for Chondrosarcoma The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform....

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    Shine A Light on Sarcoma

    July 1st, 2024July is Sarcoma Awareness Month. We are joining the Sarcoma Foundation of America and the Sarcoma Coalition in the effort to bring awareness to the Public about these Ultra-Rare Cancers. We want to invite everyone to get involved. We would like you...

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    Chondrosarcoma Patient Registry reveals one-third of CS Patients have a Recurrence / Metastasis. Efforts for Prevention are needed.

    June 29th, 2024Chondrosarcoma Patient Registry reveals one-third of CS Patients have a Recurrence / Metastasis; Efforts for Prevention are needed. The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0...

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    Chondrosarcoma Patient Registry reveals only a few Patients have had Gene testing

    June 22nd, 2024The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch we have had over 230 CS Patients participate in the registry and we just completed our first full data...

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