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Chondrosarcoma CS Foundation, Inc.

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    Steppin’ for the Cause on October 26 at 11:00am Allen Pond Bowie, Md

    Please join us on Saturday October 26 at 11:00am at Allen Pond in Bowie, Md as we honor Shayna Kramer's legacy for our 4th Annual Steppin' for the Cause 5K Walk / Run. Tickets are $30 and we are commemorating the occasion with T-shirts. To buy a...

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    Chondrosarcoma Foundation Hosts Virtual Dialogue to Address Anxiety, Stress and Depression

    The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to those who are also suffering from the debilitating effects of...

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    Quality of Life Measures for Chondrosarcoma Patients

    The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the...

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    How Diagnosis is Critical to Proper Treatment of Chondrosarcoma

    Using a different method (Time to Event) to determine the impact Diagnosis / Misdiagnosis has on Care. The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on...

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    More Self-reports are needed for Prescribed or Experimental Medications

    The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the...

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    Patient Registry shows mixed results for using chemotherapy non-conventional CS patients

    Chondrosarcoma Patient Registry Examines Self-report Results of Traditional Chemotherapy. The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023...

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    Chondrosarcoma Patient Registry indicates Immunotherapy has mixed results

    Chondrosarcoma Patient Registry indicates only a small group of Chondrosarcoma Patients had Immunotherapy with mixed results The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform....

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    Chondrosarcoma Patient Registry indicates Radiation therapy is an effective Post Surgical Treatment Intervention

    Chondrosarcoma Patient Registry indicates Radiation therapy is an effective Post Surgical Treatment Intervention in over a third of CS Patients. The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient...

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