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Chondrosarcoma CS Foundation, Inc.

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    Chondrosarcoma Patient Registry launches a set of follow-up surveys

    March 7th, 2025Chondrosarcoma Patient Registry 2.0 with a new set of follow-up surveys https://chondrosarcoma.iamrare.org We are excited to announce that we’ve received IRB approval to launch a set of new surveys for patients and caregivers who completed the...

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    Chondrosarcoma Foundation launches the Chondrosarcoma Tumor Board

    February 28th, 2025The Chondrosarcoma Foundation is proud to announce the creation of the Chondrosarcoma Tumor Board, a specialized, multidisciplinary group of medical professionals who treat chondrosarcoma. The tumor board will review cases submitted by...

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    Even with Chondrosarcoma nothing keeps Jamie down

    February 4th, 2025This Thursday is Chondrosarcoma Awareness Day, hosted annually on February 6. It will mark Shayna Kramer's heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this...

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    Ken Pilarski: The Concrete Man

    January 31st, 2025Chondrosarcoma Awareness Day is hosted annually on February 6 (less than one week away). It will mark Shayna Kramer's heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about...

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    Tribute #5 Roger Petersen A Shining Example to his family, friends and his community

    January 23rd, 2025Chondrosarcoma Awareness Day is hosted annually on February 6. It will mark Shayna Kramer's heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer...

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    Tribute 4: Rachel Moss, she fought her battle for herself and others.

    January 16th, 2025Chondrosarcoma Awareness Day is hosted annually on February 6. It will mark Shayna Kramer's heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer...

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    Chondrosarcoma Awareness Day Tribute 3: Joseph Kalil

    January 9th, 2025Chondrosarcoma Awareness Day is hosted annually on February 6. It will be Shayna Kramer's heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and...

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    Nicole serves our Country while battling EMC.

    January 2nd, 2025Happy New Year! I hope that you had a wonderful time celebrating the holidays with family and friends. Chondrosarcoma Awareness Day is hosted annually on February 6. (It will be Shayna Kramer's heavenly 34th birthday). This is our fifth annual...

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