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    Uncategorized Posts

    Research finds biomarker that could offer pathologists an accurate test to diagnose and stage chondrosarcoma

    October 14th, 2021

    A research project funded by the Bone Cancer Research Trust has found a promising clinical biomarker that offers pathologists an accurate and reproducible test to diagnose and stage chondrosarcoma, informing clinical management and deciding the type…

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    National Organization for Rare Disorders is a huge resource for patients with Rare Cancers

    October 12th, 2021

    NORD Offers Information and Support for Patients of Rare Cancers
    November 24, 2014
    Peter L. Saltonstall CURE, Winter 2014, Volume 13, Issue 4

    NORD was founded in 1983 by parents of children with rare diseases. Over the past 30 years, it has become…

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    Outcomes and Patterns of Care in Adult Skull Base Chondrosarcoma Patients in the United States


    Saavan Patel 1, Ravi S Nunna 1, James S Ryoo 1, Darius Ansari 1, Nauman S Chaudhry 1, Ankit I Mehta 2

    For more information: Outcomes and Patterns of Care in Adult Skull Base Chondrosarcoma Patients in the United States – PubMed…

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    Bone Cancer Awareness Week 2021

    October 11th, 2021

    11 – 17 October 2021, we need your help!

    76% of primary bone cancer patients in the UK are misdiagnosed and 14% of cases are in the skull, face and jaw. During #BoneCancerAwareness Week we’re educating dentists, dental healthcare professionals,…

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    John Gross, M.D.; Introduces a New Web Site to Present Bone Pathology Cases

    October 7th, 2021

    John Gross, M.D., M.S.

    This website is intended to promote education in bone and soft tissue pathology. Cases are presented in the format of radiologic images paired with scanned microscopic slides for the case. New cases will be uploaded every 8…

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    Bone Cancer Awareness Week Activities


    Bone Cancer Awareness Week 2021 11 – 17 October 2021, we need your help!

    76% of primary bone cancer patients in the UK are misdiagnosed and 14% of cases are in the skull, face and jaw. During #BoneCancerAwareness Week we’re educating dentists,…

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    NORD Publishes Shayna’s Rare Cancer Story to Honor Rare Cancer Day

    October 1st, 2021

    Sep. 17, 2021TOPIC: Patients & Members, Advocacy, Patient Stories, Voices of Rare Cancer

    A Message to Chondrosarcoma Patients: Shayna’s Rare Cancer StoryPosted by Rohan Narayanan

    Shayna had advanced metastatic chondrosarcoma, and her…

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    Today is Rare Cancer Day!

    September 30th, 2021

    

    Get Involved, Spread the Word & Hear Stories From Those Impacted ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌…

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    Videos from the Third International Virtual Dialogue are Ready to be Viewed

    September 29th, 2021

    Virtual Dialogue 3: Taking Charge of Your Care
    Third International Virtual Dialogue

    The Chondrosarcoma CS Foundation, Inc. held the Third International Forum / Virtual Dialogue featuring a panel of Chondrosarcoma survivors and prominent experts to…

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    NORD: Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program

    September 15th, 2021

    Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program

    TUCSON, Ariz. and WASHINGTON, September 15, 2021 — The Rare Disease Cures Accelerator-Data and Analytics Platform initiative (RDCA-DAP

    ®) officially launched its next…

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