Skip Nav

Contact Us

Chondrosarcoma CS Foundation, Inc.

Thank you for your interest in our company. Complete the form below to send us an email, or simply give us a call. We're looking forward to working with you.

  • 301-352-3042

    Uncategorized Posts

    Clinical Pathology Unknowns

    March 18th, 2022

    The Johns Hopkins Department of Pathology is proud to announce the launch of a new web site, “Clinical Pathology Unknowns” (https://apps.pathology.jhu.edu/cp/), an interactive clinical pathology educational resource. This…

    Read Article

    Register for our Virtual Dialogue scheduled for April 30 at 1:00pm via Zoom

    March 6th, 2022

    The Chondrosarcoma Foundation, Inc. will host their fourth International Forum / Virtual Dialogue: Moving Forward in Diagnosing and Treating Chondrosarcoma.

    In the spirit of sharing and passing knowledge about Chondrosarcoma, we invite you to…

    Read Article

    Chondrosarcoma Foundation will host the Fourth Virtual Dialogue on Saturday, April 30 at 1:00PM EST / New York time VIA Zoom

    February 23rd, 2022

    The Chondrosarcoma Foundation, Inc. will host their fourth International Forum / Virtual Dialogue featuring the following prominent experts to address new innovations, findings and technologies to improve the treatment of Chondrosarcoma.

    Anthony P….

    Read Article

    Phase 2 Study of Dasatinib (Sprycel) in Patients With Alveolar Soft,Part Sarcoma, Chondrosarcoma, Chordoma, Epithelioid,Sarcoma, or Solitary Fibrous Tumor

    February 20th, 2022

    About 20% of people with chondrosarcoma responded to the drug (tumor shrinkage by 20%).

    On average people with CS were on the drug for about 4-5 months before it was deemed ineffective though.

    In looking at the criteria for CS patients on the…

    Read Article

    CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care” published

    February 14th, 2022

    CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma Care“

    Dear SPAEN Members AND FRIENDS! We are happy and proud to announce that CTOS & SPAEN Roundtable Paper “Global Patient Involvement in Sarcoma…

    Read Article

    A list of clinical trials available for CS patients:

    February 11th, 2022

    A Study of Anlotinib Combined With or Without PD-1 Antibody on Unresectable High-grade Chondrosarcoma
    https://www.clinicaltrials.gov/ct2/show/NCT05193188?cond=Chondrosarcoma&draw=2&rank=1

    Study of INBRX-109 in Conventional…

    Read Article

    Celebrating Chondrosarcoma Awareness Day

    February 6th, 2022

    To honor Chondrosarcoma Awareness Day. our family and friends put on our Yellow ribbons wore yellow clothes we went to my daughter Shayna’s grave site this afternoon. My brother Rick drove up from Atlanta, Georgi, my brother Mark, his wife Karen and…

    Read Article

    Chondrosarcoma Foundation, NORD and Inhibrx to Establish New Patient Registry/Natural History Study


    In honor of Chondrosarcoma Awareness Day we are pleased to share this announcement.
    BOWIE, Maryland, Feb. 6, 2022–The Chondrosarcoma CS Foundation is teaming up with the National Organization for Rare Disorders (NORD) to establish a Chondrosarcoma…

    Read Article

    Renee Lund shares the story of her wonderful brother Steve

    February 5th, 2022

    Hi, my name is Renee and here is our story.

    If you have seen the movie Ferris Bueller’s Day off, I jokingly tell people that this is the story of my life. I am the big sister to my baby brother Steve, who I nicknamed “Ferris” many years…

    Read Article

    Samantha Shares Her and Her Husband’s Struggle and Their Survival.


    In 2020, right after the covid pandemic creeped out into our world, our little family that summer found out that my husband had Conventional Chondrosarcoma Grade 2 in his pelvis. There were some signs of this prior to our E.R. visit including weight…

    Read Article