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Chondrosarcoma CS Foundation, Inc.

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    Uncategorized Posts

    Join us on Tuesday Night to Address Care to Treat Chondrosarcoma

    March 5th, 2023

    The Chondrosarcoma Foundation is developing a Patient / Family/ Caregiver Advisory Board in the effort to create a voice for chondrosarcoma patient’s and caretakers to address concerns and advocate for effective treatment and quality care.

    The…

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    New Patient Registry Creates A Platform to Share Patient Journeys with Chondrosarcoma

    March 2nd, 2023

    The Chondrosarcoma Foundation in partnership with the National Organization for Rare Disorders (NORD®) has launched the Chondrosarcoma Patient Registry. Chondrosarcoma is a rare bone cancer that currently has no cure. Its prevalence and origin are…

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    Rare Disease Day 2023: Empowering Community Advocacy And Innovation

    February 24th, 2023

    The time has come to make rare diseases a national public health imperative For decades, the rare disease community has been striving for greater recognition and scientific breakthroughs addressing the unmet medical needs millions of Americans face…

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    Join the CS Foundation Patient / Caregiver / Family Advisory Board

    February 20th, 2023

    The Chondrosarcoma Foundation is developing a Patient / Caregiver / Family Advisory Board in the effort to create a voice for the chondrosarcoma community to address concerns and advocate for effective treatment and quality care.

    The advisory board…

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    In Three Days: February 6: Chondrosarcoma Awareness Day

    February 3rd, 2023

    Join the Fight

    Wear A Yellow Ribbon on Monday, February 6. Post Your Picture to #CSWECARE

    Sign Our Petition for more Clinical Trials: www.csfshayna.org/support-cs-research/

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    Remember the Contributions of David Bowles

    January 29th, 2023

    We are just one week away from hosting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 32nd birthday). This is our international effort to educate the public about this rare bone cancer and to build a coalition to support more…

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    Genomic profiling identifies genes and pathways dysregulated by HEY1-NCOA2 fusion and shines a light on mesenchymal chondrosarcoma tumorigenesis

    January 24th, 2023

    Abstract

    Mesenchymal chondrosarcoma is a rare, high-grade, primitive mesenchymal tumor. It accounts for around 2-10% of all chondrosarcomas and mainly affects adolescents and young adults. We previously described the HEY1-NCOA2 as a recurrent gene…

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    Mike Snyder: A Pioneer with A Warrior Spirit

    January 22nd, 2023

    We are just two weeks away from hosting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 32nd birthday). This is our international effort to educate the public about this rare bone cancer and to build a coalition to support more…

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    Julie Mathews and her determination to live life to the fullest and fight!

    January 10th, 2023

    We are just four weeks away from hosting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 32nd birthday). This is our international effort to educate the public about this rare bone cancer and to build a coalition to support more…

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    A genetic model for central chondrosarcoma evolution correlates with patient outcome

    January 7th, 2023

    A genetic model for central chondrosarcoma evolution correlates with patient outcome William Cross 1, Iben Lyskjær 1 2, Tom Lesluyes 3, Steven Hargreaves 1, Anna-Christina Strobl 4, Christopher Davies 1 4, Sara Waise 3 5, Shadi Hames-Fathi 1,…

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