Tribute #5 Roger Petersen A Shining Example to his family, friends and his community

Chondrosarcoma Awareness Day is hosted annually on February 6. It will mark Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and build a coalition to support more research and clinical trials. We invite all to Join the Fight. The more attention we create, the more support we generate.

Here is all we ask:

We ask that you join us by wearing something Yellow on February 6. It can be a ribbon, pin, or wrist band. We also encourage you to post pictures wearing Yellow on our social media platforms using the hashtag: #chondrosarcoma #chondrosarcomafoundation #cswecare

We also ask that you reach out and educate your family, friends and co-workers about chondrosarcoma,and share our information including stories of survivors and those losing their battle to this beast. Help us raise awareness and encourage everyone to Join the Fight. Ask your family, friends and colleagues to go to our website and add their name and email address to our petition so that we can build a strong global coalition.

www.csfshayna.org/support-cs-research

In addition to bringing awareness, in the weeks leading up to Chondrosarcoma Awareness Day: February 6, we share inspirational stories of CS Warriors.They show how strong and resilient we are in the face of adversity. Each week from now to February 6, we will share a story about a member of our community who either lost their battle with Chondrosarcoma to honor their legacy, or those who are surviving and leading productive lives with the help of surgery, radiation, orphan medications, clinical trials and new technologies.

Our first tribute was the story of Ryan Ladd, a survivor who was given the opportunity to tap into new innovative technology to reduce his severe leg pain and lead a normal life using a 3-D printer. Our second tribute featured Nicole Stickel, diagnosed with Extraskeletal Myxoid Chondrosarcoma. Nicole is currently on active duty in the Air Force and works as a radiology technician. We also shared the tragic story of Joseph Kalil, who lost his battle to Mesenchymal Chondrosarcoma last June at the young age of 23. And last week we paid tribute to Rachel Moss who lost her battle to conventional chondrosarcoma this past August at the young age of 44. We received a lot of comments from those who remembered how much Rachel cared and was an inspiration to them.

This week we honor Roger Petersen, a devoted family man, a jeweler who also had a passion for comics and combined his vocation and avocation. He was honored on the cover of the his trade magazine as a “Shining” example. Roger passed away in June 2023 from Dedifferentiated Chondrosarcoma.

Please take a few minutes to read Roger’s shining story and please share his story with others.