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Chondrosarcoma CS Foundation, Inc.

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    Support Groups

    Registration
    CS Warrior and Family / Caregiver Support Groups

    Data from our Chondrosarcoma Patient Registry indicates that the mental health and quality of life is less than what exists for other cancer patients. We want to do something about this. The Chondrosarcoma Foundation, Inc. is hosting private virtual support groups for CS Warriors and Family / Caregivers to address unmet mental health needs.

    Support Group for CS Warriors facilitated by Elsie Huefner, Ph.D.


    Elsie Huefner, Ph.D. is a doctoral-level licensed Clinical Mental Health Counselor specializing in trauma, anxiety, depression, and substance abuse. She earned her Doctorate from Capella University in 2022. Elsie was diagnosed with Chondrosarcoma on June 12, 2023, following a misdiagnosis of arthritis and bursitis. She underwent a wide resection of her left proximal femur with an allograft. The surgery was believed to have been successful with negative margins until her pathology returned with an aggressive grade 3 dedifferentiated chondrosarcoma, resulting in the need for chemotherapy. These treatments were aggressive and required inpatient admissions throughout her treatment cycles. Today, they appear to have been successful as she remains NED and is currently working through side effects from the treatments, including heart failure, kidney failure, and mobile disabilities. Elsie enjoys being a mother and wife. Her spirits are high, and she is eager to give back to other warriors.

    Schedule for Meetings (First Half of 2025):
    First Meeting: Tuesday, January 14, 2025; at 7:00PM EST/ New York time, VIA ZOOM
    Second Meeting: Tuesday, March 11, 2025; at 7:00PM EST, VIA ZOOM
    Third Meeting: Tuesday, May 13, 2025; at 7:00PM EST, VIA ZOOM

    Support Group for Family and Caregivers facilitated by Julia Parent, LCMHC


    Julia Parent, LCMHC graduated in 2017 with a master’s in Clinical Mental Health Counseling from the University of Phoenix. She worked for the past 7 years in a dual-diagnosis and mental health treatment residential and outpatient facilities. She has been the clinical director of a mental health outpatient program at Moving Forward Counseling for this past year. In 2016 Julia was diagnosed with breast cancer, formally labeled: invasive ductal carcinoma with lobular features. She was in active treatment for 10 months undergoing three types of chemotherapy, a bilateral mastectomy and radiation. She continued active treatment through a drug trial for an additional 2 years, has undergone additional procedures and operations helping to prevent recurrence as well as currently on medications designed to help prevent recurrence. Her diagnosis was life-changing for both herself as well as her husband and three children.

    Schedule for Meetings (First Half of 2025):
    First Meeting: Wednesday, February 19, 2025; at 7:00PM EST/ New York time, VIA ZOOM
    Second Meeting: Wednesday, April 16, 2025; at 7:00PM EST, VIA ZOOM
    Third Meeting: Wednesday, June 18; 2025; at 7:00PM EST, VIA ZOOM

    Please Sign Up for the Support Group Sessions

      You will be sent an e-mail with the link to Zoom as confirmation of your registration, beginning Dec. 18, 2024. Funding provided by Servier Pharmaceuticals, LLC.

      Please Support Our Mission

      CS Foundation is committed to educating the public about Chondrosarcoma and improving the treatment, care, and detection of this rare and deadly form of cancer. Please consider supporting our mission today by learning more and making a charitable donation.

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      If you would like to learn more about CS Foundation or if you would like to learn more about the resources we provide to patients, families, caregivers, and physicians, please contact us by phone or send us a message.