May 1st, 2025It is with a broken heart that I report to you the passing of my dear friend and founding foundation board member: Mike Snyder. In his case it was not chondrosarcoma that took his life but he passed away from a second heart attack this past...
Read ArticleApril 11th, 2025John Gross, M.D. is a Faculty Associate professor, and bone and soft tissue surgical pathologist at Johns Hopkins University in Baltimore, Maryland. He is also one of the founding board members of the Chondrosarcoma Foundation and has been...
Read ArticleMarch 27th, 2025Genomic Characterization of Chondrosarcoma Reveals Potential Therapeutic Targets Michael J. Wagner, MD; Erica M. Pimenta, MD, PhD1 ; Nathan W. Sweeney, PhD ; Elizabeth T. Loggers, MD, PhD; Jesse L. Roberts, MD; Elyse Brinkman, MD; Eleanor Y. Chen,...
Read ArticleMarch 18th, 2025Servier Pharmaceuticals has initiated a Phase 3 Clinical Trial for Ivosidenib, an IDH1 biomarker inhibitor. Their clinical trial is for patients diagnosed with conventional chondrosarcoma with advanced metastasis. There are about 30 sites globally...
Read ArticleMarch 7th, 2025Chondrosarcoma Patient Registry 2.0 with a new set of follow-up surveys https://chondrosarcoma.iamrare.org We are excited to announce that we’ve received IRB approval to launch a set of new surveys for patients and caregivers who completed the...
Read ArticleFebruary 28th, 2025The Chondrosarcoma Foundation is proud to announce the creation of the Chondrosarcoma Tumor Board, a specialized, multidisciplinary group of medical professionals who treat chondrosarcoma. The tumor board will review cases submitted by...
Read ArticleFebruary 4th, 2025This Thursday is Chondrosarcoma Awareness Day, hosted annually on February 6. It will mark Shayna Kramer's heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this...
Read ArticleJanuary 31st, 2025Chondrosarcoma Awareness Day is hosted annually on February 6 (less than one week away). It will mark Shayna Kramer's heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about...
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