Julie Mathews and her determination to live life to the fullest and fight!

We are just four weeks away from hosting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 32nd birthday). This is our international effort to educate the public about this rare bone cancer and to build a coalition to support more research and clinical trials. The more attention we create, the more support we generate.

Here is all we ask:
We ask that you join us in wearing a Yellow Ribbon or a yellow wrist band and post pictures wearing Yellow on social media platforms using the hashtag: #cswecare We also ask that you reach out and educate your family, friends and co-workers about chondrosarcoma, help them understand that we need to bring awareness to fight this deadly beast and encourage them to join us by simply going to our website to add their name and email address to our petition:


In addition, we use Chondrosarcoma Awareness Day: February 6, to share stories of our community / our family who provide us with inspiration. Each week before February 6, we share a new story about a member of our community. Some of our members lost their battle with Chondrosarcoma, others are surviving, leading productive lives with the help of surgery, radiation, orphan medications and clinical trials. Our first dedication was Parker Jeffrey Morgan who at the young age of 21 with his whole life ahead of him lost his battle with Conventional Chondrosarcoma Grade 3. Last week, we were honored to share the story of Amber Sarcone, a special education teacher and a guidance counselor at a Charter School in Philadelphia and a Super Fan of the Philadelphia Eagles. Amber has conventional chondrosarcoma which evolved from Osteochondroma which she had before her second birthday.

This week, we pay tribute to Julie Mathews. Julie lives near Orlando, Florida with her husband Aaron and her two son’s Aiden (16) and Tyson (14) O’Berry. Julie and her family know how to have fun and whenever possible they go to the beach, Disney World, and other fun places. What ever they do, they enjoy and appreciate where they are and enjoy the company of each other. Despite fighting chondrosarcoma, Julie has been going to school and is about to get her bachelor’s degree.

Julie is the ultimate champion, warrior and fighter. Despite what ever obstacles are in front of her, Julie does everything she can possibly do to confront and win those battles. She is without a doubt a pioneer who is leading the way for patients with Extra-skeletal MyxoidChondrosarcoma by enrolling and getting treatment in the Phase 1: Non-conventional INBRX 109 clinical trial. Julie is an inspiration in how to persevere, keep fighting and never give up.

Please take a few minutes to read our tribute to honor Julie Mathews.