November 5th, 2024

The videos from Virtual Dialogue 6: Improving Stress, Anxiety, Depression and the Quality of Life are posted on the Chondrosarcoma Web Site.

Go to: https://csfshayna.org/virtual-dialogue6-improving…/

Please feel free to share the link with…

October 27th, 2024

Check out the pictures from Steppin’ for the Cause, the Chondrosarcoma Foundation’s 4th Annual 5K Charity Walk / Run held at Allen Pond, Bowie, Md on October 26. Go to our Facebook page: https://www.facebook.com/groups/1213169615757418

October 25th, 2024

The Chondrosarcoma Foundation had the opportunity to share the results of their first data analysis of the Chondrosarcoma Patient Registry at the NORD: National Organization for Rare Disorders Breakthrough Summit held October 20-22 in Washington,…

October 22nd, 2024

Wednesday, October 30, 2024, from 7:00pm – 9:00pm (EST/New York time) VIA Zoom.
Please register at: https://csfshayna.org/virtual-dialogue6-registration
There is still time to register for this event. The Chondrosarcoma Foundation has had many…

September 21st, 2024

The Chondrosarcoma Foundation will present the findings of their first data analysis through Poster Presentations of the Chondrosarcoma Patient Registry at two upcoming medical conferences. The National Organization for Rare Diseases (NORD),…

September 13th, 2024

Please join us on Saturday October 26 at 11:00am at Allen Pond in Bowie, Md as we honor Shayna Kramer’s legacy for our 4th Annual Steppin’ for the Cause 5K Walk / Run.

Tickets are $30 and we are commemorating the occasion with T-shirts. To buy a…

September 5th, 2024

The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to those who are also suffering from the debilitating effects of…

August 20th, 2024

The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the…

August 13th, 2024

Using a different method (Time to Event) to determine the impact Diagnosis / Misdiagnosis has on Care.

The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on…

August 3rd, 2024

The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the…