July 28th, 2024
Chondrosarcoma Patient Registry Examines Self-report Results of Traditional Chemotherapy.
The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023…
Read ArticleJuly 20th, 2024
Chondrosarcoma Patient Registry indicates only a small group of Chondrosarcoma Patients had Immunotherapy with mixed results
The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform….
Read ArticleJuly 13th, 2024
Chondrosarcoma Patient Registry indicates Radiation therapy is an effective Post Surgical Treatment Intervention in over a third of CS Patients.
The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient…
Read ArticleJuly 5th, 2024
Chondrosarcoma Patient Registry confirms Surgery is the first and most utilized Treatment Intervention for Chondrosarcoma
The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform….
Read ArticleJuly 1st, 2024
July is Sarcoma Awareness Month. We are joining the Sarcoma Foundation of America and the Sarcoma Coalition in the effort to bring awareness to the Public about these Ultra-Rare Cancers. We want to invite everyone to get involved.
We would like you…
Read ArticleJune 29th, 2024
Chondrosarcoma Patient Registry reveals one-third of CS Patients have a Recurrence / Metastasis; Efforts for Prevention are needed.
The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0…
Read ArticleJune 22nd, 2024
The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch we have had over 230 CS Patients participate in the registry and we just completed our first full data…
Read ArticleJune 15th, 2024
The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform and the 44th Foundation to have a Patient Registry in the platform itself. In February 2023, we had a soft launch with a few…
Read ArticleJune 8th, 2024
The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform and the 44th Foundation to have a Patient Registry in the platform itself. We were approved by NorthStar IRB in early February…
Read ArticleMay 13th, 2024
The Chondrosarcoma (CS) Foundation will commemorate its fourth anniversary by continuing to educate the public about this rare bone cancer, advocate for patients fighting the disease and will report on a global natural history study.
On May 14,…