September 21st, 2024
The Chondrosarcoma Foundation will present the findings of their first data analysis through Poster Presentations of the Chondrosarcoma Patient Registry at two upcoming medical conferences. The National Organization for Rare Diseases (NORD),…
Read ArticleSeptember 13th, 2024
Please join us on Saturday October 26 at 11:00am at Allen Pond in Bowie, Md as we honor Shayna Kramer’s legacy for our 4th Annual Steppin’ for the Cause 5K Walk / Run.
Tickets are $30 and we are commemorating the occasion with T-shirts. To buy a…
Read ArticleSeptember 5th, 2024
The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to those who are also suffering from the debilitating effects of…
Read ArticleAugust 20th, 2024
The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the…
Read ArticleAugust 13th, 2024
Using a different method (Time to Event) to determine the impact Diagnosis / Misdiagnosis has on Care.
The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on…
Read ArticleAugust 3rd, 2024
The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023, we have had over 230 CS Patients participate in the registry and we are reporting the…
Read ArticleJuly 28th, 2024
Chondrosarcoma Patient Registry Examines Self-report Results of Traditional Chemotherapy.
The Chondrosarcoma Foundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform. Since our launch on March 1, 2023…
Read ArticleJuly 20th, 2024
Chondrosarcoma Patient Registry indicates only a small group of Chondrosarcoma Patients had Immunotherapy with mixed results
The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform….
Read ArticleJuly 13th, 2024
Chondrosarcoma Patient Registry indicates Radiation therapy is an effective Post Surgical Treatment Intervention in over a third of CS Patients.
The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient…
Read ArticleJuly 5th, 2024
Chondrosarcoma Patient Registry confirms Surgery is the first and most utilized Treatment Intervention for Chondrosarcoma
The ChondrosarcomaFoundation was the first foundation to be inducted into the NORD IAMRARE Patient Registry 2.0 platform….
Read Article