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    Chondrosarcoma Awareness Day Tribute 3: Joseph Kalil

    January 9th, 2025

    Chondrosarcoma Awareness Day is hosted annually on February 6. It will be Shayna Kramer’s heavenly 34th birthday. This is our fifth annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and…

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    Nicole serves our Country while battling EMC.

    January 2nd, 2025

    Happy New Year! I hope that you had a wonderful time celebrating the holidays with family and friends.

    Chondrosarcoma Awareness Day is hosted annually on February 6. (It will be Shayna Kramer’s heavenly 34th birthday). This is our fifth annual…

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    First Chondrosarcoma Awareness Day Tribute: Ryan Ladd fighting Chondrosarcoma using a 3-D Printer

    December 26th, 2024

    Chondrosarcoma Awareness Day is hosted annually on February 6. (It will be Shayna Kramer’s heavenly 34th birthday). This is our annual public awareness campaign, an international effort to educate the public about this ultra-rare bone cancer and…

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    Holiday Wishes and New Year Programs to Address Unmet Needs

    December 16th, 2024

    I want to wish everyone the best for this holiday season. May you all cherish the moments with your family and blessings to you all for a healthy (Pain-free) holiday season and Happy New Year.

    I am amazed by the caring and compassion you have for…

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    Delay’ and ‘Deny’: The Outrage Over Prior Authorization An insurance practice buries doctors in paper work, sometimes with disastrous results.

    December 12th, 2024

    Editor’s Note: This story was published last year, before the murder of UnitedHealthcare’s chief executive, which is drawing renewed attention to how the insurance industry denies care to patients.

    After experiencing mysterious hip and back…

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    Chondrosarcoma Foundation Hosts Support Groups to Address,, Anxiety, Stress and Depression

    November 25th, 2024

    The Chondrosarcoma Foundation has had many requests from patients and family members to host support groups. They expressed a desire to have a forum to share their concerns to those who are also suffering from the debilitating effects of…

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    Videos from Virtual Dialogue 6 are posted and ready to be viewed.

    November 5th, 2024

    The videos from Virtual Dialogue 6: Improving Stress, Anxiety, Depression and the Quality of Life are posted on the Chondrosarcoma Web Site.

    Go to: https://csfshayna.org/virtual-dialogue6-improving…/

    Please feel free to share the link with…

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    Pictures from Steppin’ for the Cause

    October 27th, 2024

    Check out the pictures from Steppin’ for the Cause, the Chondrosarcoma Foundation’s 4th Annual 5K Charity Walk / Run held at Allen Pond, Bowie, Md on October 26. Go to our Facebook page: https://www.facebook.com/groups/1213169615757418

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    Insights from the NORD Summit on the Chondrosarcoma Patient Registry

    October 25th, 2024

    The Chondrosarcoma Foundation had the opportunity to share the results of their first data analysis of the Chondrosarcoma Patient Registry at the NORD: National Organization for Rare Disorders Breakthrough Summit held October 20-22 in Washington,…

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    Registration is open for Chondrosarcoma Foundation Virtual Dialogue to Address Anxiety, Stress and Depression and Quality of Life

    October 22nd, 2024

    Wednesday, October 30, 2024, from 7:00pm – 9:00pm (EST/New York time) VIA Zoom.
    Please register at: https://csfshayna.org/virtual-dialogue6-registration
    There is still time to register for this event. The Chondrosarcoma Foundation has had many…

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