Amber Sarcone and her drive to succeed and beat chondrosarcoma.

Happy New Year!

With the new year, the Chondrosarcoma Foundation is kicking-off the year by hosting and promoting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 32nd birthday). We ask that you join us in wearing a Yellow Ribbon or a yellow wrist band and post pictures wearing Yellow on social media platforms at #cswecare This is our international effort to educate the public about this rare bone cancer and to build a coalition to support more research and clinical trials. Please reach out and educate your family, friends and co-workers about chondrosarcoma, help them understand that we need to bring awareness to fight this deadly beast and encourage them to join us by simply going to our website to add their name and email address to our petition:

We will also use Chondrosarcoma Awareness Day: February 6, to share stories of our community / our family who provide us with inspiration. Each week before February 6, we will share a new story about a member of our community. Some of our members lost their battle with Chondrosarcoma, others are surviving, leading productive lives with the help of surgery, radiation, orphan medications and clinical trials. Last month our first dedication was Parker Jeffrey Morgan who at the young age of 21 with his whole life ahead of him lost his battle with Conventional Chondrosarcoma Grade 3. Let us remember the life Parker, his story, his life and his heroic struggle with this beast. In Parker’s name, we honor his memory, his legacy and vow to keep fighting.

This week we are honored to share the story of Amber Sarcone. Amber has grown up in the Delaware Valley (Philadelphia suburbs). She is a special education teacher and a guidance counselor at a Charter School in Philadelphia. She is also a Super Fan of the Philadelphia Eagles and last summer was invited by the Eagles to go to Las Vegas to introduce the newest draft pick for them. Amber has conventional chondrosarcoma which evolved from Osteochondroma which she had before her second birthday.

Amber’s mother Debbie works for Berkshire Hathaway Home Services in Mount Laurel, New Jersey and she convinced her company to award the foundation a small grant to complete building our patient registry. Amber’s father, owns one of the most famous bakeries in South Philadelphia: Sarcone’s.

Amber’s goal in life is to advocate, shed light and beat chondrosarcoma as well as serve her students and live a full and productive life. Amber joined the board of the Chondrosarcoma Foundation last year and also personally recruited her orthopedic surgeon to join us as well.

Please take a few minutes to read our tribute to honor Amber Sarcone.