Amanda Richmond, A Wife, A Mother, A Fighter

Second Tribute for Chondrosarcoma Awareness Day

We are four weeks away from hosting Chondrosarcoma Awareness Day on February 6 (Shayna’s heavenly 33rd birthday). This is our international effort to educate the public about this rare bone cancer and to build a coalition to support more research and clinical trials. The more attention we create, the more support we generate.

Here is all we ask:
We ask that you join us in wearing something Yellow on February 6 and post pictures wearing Yellow on social media platforms using the hashtag: #cswecare #chondrosarcoma #chondrosarcomafoundation We also ask that you reach out and educate your family, friends and co-workers about chondrosarcoma, share these tributes and help them understand that we need to bring awareness to fight this deadly beast and encourage them to join us by simply going to our website to add their name and email address to our petition:

In addition, we use Chondrosarcoma Awareness Day: February 6, to share stories of our community / our family who provide us with inspiration. Each week before February 6, we share a new story about a member of our community. Some of our members lost their battle with Chondrosarcoma, others are surviving, leading productive lives with the help of surgery, radiation, orphan medications and clinical trials. Last week, we paid tribute to Pete Musto. Pete was an electrical engineer, worked on he Space Shuttle and a father of a family of five children. Pete lost his battle from conventional chondrosarcoma grade 2/3 which originated in his larynx last March. He is survived by his wife Jennifer, who remains active in our foundation honoring Pete’s legacy as well as their five children. We also shared the story of Sadiq Akilu from Nigeria who also has conventional Grade 2 and has had two surgeries on his pelvis. Sadiq comes from a part of world where there are no treatment options available and is fighting to get into a clinical trial.

This week we introduce you to Amanda Richmond. Amanda lives in Huntsville, Alabama with her husband and two children. She tells her story about her diagnosis and on-going fight with Conventional Chondrosarcoma as well as her willingness to participate in research and clinical trials to beat this menacing rare bone cancer.

Please take a few minutes to read our tribute honoring Amanda Richmond.